The registry and surveillance system for congenital anomalies in Hormozgan province

A. Nejatizadeh, N. Roozbeh, H. Kamalzadeh, M. Rezaei, Fatemeh Naserian, Zeynab Jozari
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Abstract

Aim: Congenital anomalies are one of the leading causes of disabilities and mortality in children worldwide. We aimed to set up a system for scientific registration to reduce perinatal mortality and improve the quality of health services. Methods: As an applied developmental research in 2020, we launched a web-based hospital registration and surveillance system for major congenital anomalies by C# programming language hosted at "mis.hums.ac.ir". Data management was comprised of a) registration of anomalies b) training how to use ICD10 c) imaging specific cases d) assessing the accuracy of the data e) sending information to definite centers. All the live births, fetal deaths and pregnancy termination along with physical examination, reviewing hospital records and parental interviews were recorded. The present system is of two compartments including 43 maternal and 20 neonatal elements. Results: Initially, the system was set up based on hospital data in two main referral hospitals in Bandar Abbas. Next, all the hospitals in the province, were gradually covered by the system in an active and passive combination. Major congenital anomalies are registered using ICD-10. During the first four months after starting the project, one thousand births were registered and 18 cases of congenital malformations were observed and confirmed. Conclusion: This study provides the minimum data set required to record congenital anomalies for the first time in southern Iran. This event can be useful in designing electronic patient records. This, itself, will improve perinatal health indicators, particularly, prevention and management of congenital birth
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霍尔木兹甘省先天性畸形登记和监测系统
目的:先天性畸形是全世界儿童残疾和死亡的主要原因之一。建立科学登记制度,降低围产期死亡率,提高卫生服务质量。方法:作为2020年的一项应用开发研究,我们采用c#编程语言,在“mis.hums.ac.ir”网站上开发了基于web的重大先天性异常医院登记监测系统。数据管理包括a)异常注册b)培训如何使用ICD10 c)成像特定病例d)评估数据的准确性e)将信息发送到确定的中心。所有的活产、胎儿死亡和终止妊娠以及体检、审查医院记录和父母访谈都被记录下来。目前的系统是两个隔间,包括43个产妇和20个新生儿元素。结果:最初,该系统是根据阿巴斯港两家主要转诊医院的医院数据建立的。接下来,逐步对全省所有医院实行主动与被动相结合的制度覆盖。主要先天性畸形用ICD-10进行登记。在项目开始后的头四个月,登记了1 000名新生儿,观察并确认了18例先天性畸形。结论:本研究首次在伊朗南部提供了记录先天性异常所需的最小数据集。该事件可用于设计电子病历。这本身将改善围产期保健指标,特别是预防和管理先天性分娩
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