Parental Opinions on Treatment Decisions for Myelomeningocele Infants: A Descriptive Study

R. A.acobs, A1. V. legrete, B. M. ohnson, Korsch
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引用次数: 2

Abstract

Parents of MMC patients have strong attitudes and beliefs on specific issues. They believed in the need to be involved in decisions regarding their children and felt strongly that their role was central and was important as that of the physician. They believed also in the importance of providing both medical and nutritional care to handicapped infants with a minimum of government intrusion.
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父母对脊髓脊膜膨出婴儿治疗决策的意见:一项描述性研究
MMC患者的父母在具体问题上有强烈的态度和信念。他们相信有必要参与孩子的决定,并且强烈地感觉到他们的角色是中心的,和医生一样重要。他们还认为,必须在政府干预最少的情况下向残疾婴儿提供医疗和营养护理。
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