Focus on musculoskeletal health in women with bleeding disorders

A. Dougall, L. Frenzel
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Abstract

Abstract Maintaining good musculoskeletal health, including good oral health, is as important for women with bleeding disorders (WBD) as it is for men. Many people with bleeding disorders ignore bleeding from their gums, believing it to be part of their condition. However, it may be a sign of periodontal disease, which left untreated can lead to accelerated tooth loss and infection, adversely affecting overall health. A good diet and access to good dental care from childhood are important to maintaining good oral health in WBD. Joint bleeding and degeneration are not limited to people with more severe forms of haemophilia; joint-related diagnoses have been shown to be twice as common among haemophilia carriers and women with mild haemophilia than in the general population. Women with type 3 von Willebrand disease experience comparable joint outcomes to younger intensively treated patients with severe haemophilia. Neither gum nor joint bleeds should ever be considered normal, as both can be treated to avoid progressive disease. Dental and joint specialists and physiotherapists should work closely with haemophilia teams to ensure optimal care for long-term preservation of musculoskeletal health.
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关注出血性疾病妇女的肌肉骨骼健康
保持良好的肌肉骨骼健康,包括良好的口腔健康,对出血性疾病(WBD)的女性和男性一样重要。许多患有出血性疾病的人忽视了牙龈出血,认为这是他们疾病的一部分。然而,这可能是牙周病的征兆,如果不及时治疗,可能会导致牙齿加速脱落和感染,对整体健康产生不利影响。良好的饮食和从小获得良好的牙齿保健对于维持WBD患者良好的口腔健康非常重要。关节出血和变性并不局限于血友病更严重形式的人;关节相关的诊断在血友病携带者和患有轻度血友病的妇女中比在一般人群中常见两倍。患有3型血管性血友病的妇女与接受强化治疗的年轻严重血友病患者的联合预后相当。牙龈和关节出血都不应该被认为是正常的,因为两者都可以治疗以避免疾病的发展。牙科和关节专家和物理治疗师应与血友病团队密切合作,以确保长期保持肌肉骨骼健康的最佳护理。
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