A Qualitative Approach to Understanding Turkish Mothers of Children With Autism: Implications for Counselling

Selda Koydemir-Ozden, Ülkü Tosun
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引用次数: 21

Abstract

Most children with autism exhibit a variety of behaviours, which may create considerable stress in families. Parents of children with autism have to learn many strategies to support their children. Understanding the experiences of parents of autistic children is crucial in the design and delivery of the appropriate counselling services. The present study attempted to investigate the impact of having an autistic child on the lives of Turkish mothers. For this aim, a Consensual Qualitative Research (CQR) Approach was followed. Semi-structured interviews were conducted with 13 mothers of autistic children. The interview questions were designed to investigate many facets of the mothers' experiences. For the data analysis, steps of CQR were followed, namely transcription of data, identification of main domains and core ideas, identification of categories and subcategories, and cross analysis. The analyses resulted in a variety of domains such as the reactions to the disability of the child, experience of stress and burnout, involvement with the education of the child, and evaluation of the facilities of the special education centre. Recommendations for guidance and counselling were drawn based on the categories of each domain.
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一种定性的方法来理解自闭症儿童的土耳其母亲:对咨询的影响
大多数自闭症儿童表现出各种各样的行为,这可能会给家庭带来相当大的压力。自闭症儿童的父母必须学习许多策略来支持他们的孩子。了解自闭症儿童父母的经历对于设计和提供适当的咨询服务至关重要。本研究试图调查自闭症儿童对土耳其母亲生活的影响。为此目的,遵循了共识定性研究(CQR)方法。对13名自闭症儿童的母亲进行了半结构化访谈。访谈问题的设计是为了调查母亲们经历的许多方面。数据分析遵循CQR的步骤,即转录数据、识别主要域和核心思想、识别类别和子类别、交叉分析。这些分析产生了各种各样的领域,例如对儿童残疾的反应、压力和倦怠的经历、参与儿童的教育以及对特殊教育中心设施的评价。根据每个领域的类别提出了指导和咨询建议。
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