Challenges of Congenital Heart Surgery in Brazil: It is Time to Designate Pediatric Congenital Heart Surgery Subspecialty.

Valdester Cavalcante Pinto, Leonardo Augusto Miana, Fábio Binhara Navarro, Bruno da Costa Rocha, Renato Samy Assad, Marcos Aurélio Barboza de Oliveira, Fábio Said Salum, Ulisses Alexandre Croti, Beatriz Helena Sanches Furlanetto, Marcelo Biscegli Jatene, Luiz Fernando Caneo, Andrey José de Oliveira Monteiro, Fernando Ribeiro de Moraes, Fernando Antoniali, Pedro Rafael Salerno, Vinicius José da Silva Nina
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Abstract

Congenital heart disease (CHD) affects eight to ten out of every 1,000 births, resulting in approximately 23,057 new cases in Brazil in 2022. About one in four children with CHD requires surgery or other procedures in the first year of life, and it is expected that approximately 81% of these children with CHD will survive until at least 35 years of age. Professionals choosing to specialize in CHD surgery face numerous challenges, not only related to mastering surgical techniques and the complexity of the diseases but also to the lack of recognition by medical societies as a separate subspecialty. Furthermore, families face difficulties when access to services capable of providing treatment for these children. To address these challenges, it is essential to have specialized hospitals, qualified professionals, updated technologies, sustainable industry, appropriate financing, quality assessment systems, and knowledge generation. The path to excellence involves specialization across all involved parties. As we reflect on the importance of Pediatric Cardiovascular Surgery and Congenital Heart Diseases establishing themselves as a subspecialty of Cardiovascular Surgery, it is essential to look beyond our borders to countries like the United States of America and United Kingdom, where this evolution is already a reality. This autonomy has led to significant advancements in research, education, and patient care outcomes, establishing a care model. By following this path in Brazil, we not only align our practice with the highest international standards but also demonstrate our maturity and the ability to meet the specific needs of patients with CHD and those with acquired childhood heart disease.

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巴西先天性心脏病手术面临的挑战:现在是指定小儿先天性心脏病手术亚专科的时候了。
每 1000 个新生儿中就有 8 到 10 个患有先天性心脏病 (CHD),因此 2022 年巴西将新增约 23 057 个病例。大约每四名患有先天性心脏病的儿童中就有一名需要在出生后第一年接受手术或其他治疗,预计这些患有先天性心脏病的儿童中大约有 81% 至少能活到 35 岁。选择专门从事先天性心脏病手术的专业人员面临着众多挑战,这不仅与掌握外科技术和疾病的复杂性有关,还与作为一个独立的亚专科未得到医学会的认可有关。此外,这些家庭在获得能够为这些儿童提供治疗的服务方面也面临困难。要应对这些挑战,必须要有专科医院、合格的专业人员、最新的技术、可持续的产业、适当的融资、质量评估系统和知识创造。通往卓越的道路涉及所有相关方的专业化。当我们思考将小儿心血管外科和先天性心脏病确立为心血管外科亚专科的重要性时,有必要将目光投向我们的国界之外,看看美国和英国等国家,这些国家已经实现了这一演变。这种自主性使研究、教育和病人护理成果取得了重大进展,建立了一种护理模式。在巴西,通过走这条道路,我们不仅使我们的实践与国际最高标准接轨,还证明了我们的成熟和满足先天性心脏病患者和后天性儿童心脏病患者特殊需求的能力。
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