Patient Information Needs and Decision-Making Before a Cardiac Implantable Electronic Device: A Qualitative Study Utilizing Social Media Data.

IF 1.6 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Journal of Clinical Psychology in Medical Settings Pub Date : 2024-05-21 DOI:10.1007/s10880-024-10024-6
Mitchell Nicmanis, Joshua Holmes, Melissa Oxlad, Anna Chur-Hansen
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Abstract

The decision to receive a cardiac implantable electronic device (CIED) represents a challenging experience for patients. However, the majority of previous research has only considered retrospective accounts of patient experiences. This study aimed to use social media data to characterize the information sought by people anticipating or considering CIED implantation and factors that influence their decision-making experiences. A Python-based script was used to collect posts made to a community intended for discussions concerning CIEDs on the social media platform Reddit. Reflexive content analysis was used to analyze the collected data. From 799 posts collected, 101 made by 86 participants were analyzed. The reported median (range) age of participants was 34 (16-67), and most were anticipating or considering a pacemaker. Three overarching categories classified the data: "Use of social media to meet informational and other needs"; "Factors influencing acceptance of the need for implantation"; and "Specific concerns considered during decision-making." Participants anticipating or considering a CIED predominantly sought experiential information. Among asymptomatic participants, doubts were prevalent, with acceptance being an influential factor in decision-making. Healthcare professionals should recognize the informational and emotional needs of prospective CIED patients and tailor support mechanisms to better facilitate their decision-making.

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患者在使用心脏植入式电子设备前的信息需求和决策制定:利用社交媒体数据的定性研究。
决定接受心脏植入式电子设备(CIED)对患者来说是一次具有挑战性的经历。然而,以往的研究大多只考虑了患者经历的回顾性描述。本研究旨在利用社交媒体数据来描述预期或考虑植入 CIED 的患者所寻求的信息,以及影响其决策经历的因素。研究人员使用基于Python的脚本,收集了社交媒体平台Reddit上有关CIED讨论社区的帖子。对收集到的数据进行了反思性内容分析。在收集到的 799 篇帖子中,对 86 名参与者发表的 101 篇帖子进行了分析。据报告,参与者的年龄中位数(范围)为 34 岁(16-67 岁),大多数人都在期待或考虑安装心脏起搏器。数据分为三大类:"使用社交媒体满足信息和其他需求"、"影响接受植入需求的因素 "和 "决策过程中考虑的具体问题"。预期或考虑植入 CIED 的参与者主要寻求体验信息。在无症状的参与者中,普遍存在疑虑,而接受度是影响决策的一个因素。医疗保健专业人员应认识到潜在的CIED患者在信息和情感方面的需求,并为他们量身定制支持机制,以更好地帮助他们做出决策。
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来源期刊
CiteScore
4.00
自引率
4.50%
发文量
93
期刊介绍: Journal of Clinical Psychology in Medical Settings is an international forum for the publication of peer-reviewed original papers related to all areas of the science and practice of psychologists in medical settings. Manuscripts are chosen that have a broad appeal across psychology as well as other health care disciplines, reflecting varying backgrounds, interests, and specializations. The journal publishes original research, treatment outcome trials, meta-analyses, literature reviews, conceptual papers, brief scientific reports, and scholarly case studies. Papers accepted address clinical matters in medical settings; integrated care; health disparities; education and training of the future psychology workforce; interdisciplinary collaboration, training, and professionalism; licensing, credentialing, and privileging in hospital practice; research and practice ethics; professional development of psychologists in academic health centers; professional practice matters in medical settings; and cultural, economic, political, regulatory, and systems factors in health care. In summary, the journal provides a forum for papers predicted to have significant theoretical or practical importance for the application of psychology in medical settings.
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