Care for the cerebrovascular accident survivors: experiences of family caregivers.

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES BMC Palliative Care Pub Date : 2024-06-01 DOI:10.1186/s12904-024-01468-6
Fortune Selasi Atsu, Nkosi Nkosi Botha, Cynthia Esinam Segbedzi, Mary Aku Ogum, Daniel Apaak, Ivy Selorm Tsedze, Lucy Adjanor Akoto, Edward Wilson Ansah
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Abstract

Background: The role of family caregivers in the management of cerebrovascular accident survivors is invaluable. So far, there is a strong evidence affirming the effectiveness of family support for cerebrovascular accident survivors. Meanwhile, caring for cerebrovascular survivors can be labour and time intensive and pretty stressful for caregivers. The purpose of the study was to examine the lived experiences of family caregivers of cerebrovascular accident survivors in the Ho Municipality in the Volta Region of Ghana. This aims are to establish their caregivers' knowledge, preparedness, and impact of caregiving on the caregiver, and coping strategies caregivers adopted.

Methods: Using a four-item (with 14 prompts) interview guide and descriptive phenomenological approach, we gathered and analysed data from 37 family caregivers in the Ho Municipality of Ghana.

Results: We found that caregivers had limited knowledge about cerebrovascular disease-risk factors and were ill-prepared for their caregiving roles. Additionally, we found limited knowledge about coping strategies among the caregivers. We further report that some caregivers lost close relationships, and their jobs because of the caregiving, they also used fasting and prayer as coping strategies.

Conclusions: Caregivers suffered broken relationship, loss their jobs and incomes due to their caregiving roles. Moreover, some engaged in fasting and prayers, and alcohol use to cope with the stress associated with caring for the cerebrovascular accident survivors. We discussed the potential implications of our findings on the realisation of the Sustainable Development Goal 3.4. The aim of this goal is to reduce by 75% premature deaths due to cerebrovascular and other non-communicable diseases by 2030.

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护理脑血管意外幸存者:家庭护理人员的经验。
背景:家庭护理人员在脑血管意外幸存者的管理中发挥着不可估量的作用。迄今为止,已有大量证据证实家庭支持对脑血管意外幸存者的有效性。同时,照顾脑血管意外幸存者需要花费大量的人力和时间,对照顾者来说压力也相当大。本研究旨在考察加纳沃尔特地区霍市脑血管意外幸存者家庭照顾者的生活经历。其目的是了解照顾者的知识、准备情况、照顾对照顾者的影响以及照顾者采取的应对策略:方法:我们采用四项目(14 个提示)访谈指南和描述性现象学方法,收集并分析了加纳霍市 37 位家庭护理人员的数据:结果:我们发现,护理人员对脑血管疾病风险因素的了解有限,而且对其护理角色准备不足。此外,我们还发现照顾者对应对策略的了解有限。我们还报告说,一些护理人员因为护理工作而失去了亲密关系和工作,他们还将禁食和祈祷作为应对策略:照顾者因照顾他人而关系破裂、失去工作和收入。此外,一些照顾者通过禁食、祈祷和饮酒来应对与照顾脑血管意外幸存者相关的压力。我们讨论了我们的研究结果对实现可持续发展目标 3.4 的潜在影响。该目标旨在到 2030 年将脑血管疾病和其他非传染性疾病导致的过早死亡人数减少 75%。
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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
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