Prediction of caregiver psychological distress in amyotrophic lateral sclerosis: A cross-sectional study.

IF 1.9 4区医学 Q3 PSYCHOLOGY, CLINICAL Rehabilitation Psychology Pub Date : 2024-11-01 Epub Date: 2024-06-20 DOI:10.1037/rep0000554

Jesús Privado, Elena Sanchis Sanchis, David Sancho-Cantus, Laura Cubero-Plazas, Esther Navarro-Illana, José Enrique de la Rubia Ortí

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Abstract

Purpose/objective: To propose a predictive model for caregivers' psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex).

Research method/design: A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers.

Results: ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition.

Conclusions/implications: The proposed confirmatory model demonstrates that patients' psychological distress is the best predictor of psychological distress in their caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

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肌萎缩侧索硬化症患者护理者心理困扰的预测：横断面研究

目的/目标：根据从肌萎缩性脊髓侧索硬化症（ALS）患者处收集的不同数据（认知水平、心理压力、ALS类型和性别），提出护理者心理压力（包括焦虑、抑郁和认知超负荷）的预测模型：研究方法/设计：横断面研究，样本为 51 名 ALS 患者及其主要照顾者。研究使用了多种工具，如贝克焦虑量表、ALS抑郁量表-12、爱丁堡认知和行为ALS筛查、Zarit负担访谈、抑郁自评量表和照顾者焦虑自评量表：ALS类型、性别和认知能力是预测照顾者痛苦的变量，而主要的解释变量是患者本身的痛苦。脊髓性脊髓侧索硬化症（ALS）会导致护理人员产生更高的心理压力（β = .38），男性 ALS 患者和认知能力受损的患者也会产生更高的心理压力：所提出的确认模型表明，患者的心理困扰是护理人员心理困扰的最佳预测指标。(PsycInfo Database Record (c) 2024 APA，版权所有）。

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来源期刊

Rehabilitation Psychology Multiple-

CiteScore

4.80

自引率

7.40%

发文量

期刊介绍： Rehabilitation Psychology is a quarterly peer-reviewed journal that publishes articles in furtherance of the mission of Division 22 (Rehabilitation Psychology) of the American Psychological Association and to advance the science and practice of rehabilitation psychology. Rehabilitation psychologists consider the entire network of biological, psychological, social, environmental, and political factors that affect the functioning of persons with disabilities or chronic illness. Given the breadth of rehabilitation psychology, the journal"s scope is broadly defined.