Family Involvement in the Care of Nursing Home Residents With Dementia: A Scoping Review.

IF 2.2 3区医学 Q2 GERONTOLOGY Journal of Applied Gerontology Pub Date : 2024-07-20 DOI:10.1177/07334648241255534

Andrea Wei, Jessica Bell, Jenna Locke, Ashley Roach, Anita Rogers, Evan Plys, Dalit Zaguri-Greener, Anna Zisberg, Ruth P Lopez

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Abstract

Family members are involved in the lives of older adults with dementia in complex ways. This scoping review synthesizes existing research on family involvement in the care of nursing home residents with advanced dementia. Using the Arksey and O'Malley scoping review framework, electronic searches of PubMed, EBSCO's CINAHL Complete, and APA PsychInfo on the Ovid platform were conducted. Twenty-eight studies met inclusion criteria. Emergent themes and definitions of involvement were obtained through thematic analysis, including: (1) contact (through visitation, calling, or writing letters); (2) engagement in care activities (instrumental/activities of daily living); (3) planning and monitoring care (being aware of health and treatment changes, partnership with care staff, ensuring adequate care, and decision-making); and (4) supporting the resident (advocacy, socioemotional support, and financial support). Moreover, limited psychometrically sound instruments exist to measure family involvement. These limitations stall the progression of research targeting family involvement.

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家庭参与护理患有痴呆症的养老院住户：范围界定综述》。

家庭成员以复杂的方式参与到痴呆症老年人的生活中。本概括性综述综合了有关家庭参与晚期痴呆症患者疗养院护理的现有研究。采用 Arksey 和 O'Malley 的范围界定综述框架，在 Ovid 平台上对 PubMed、EBSCO 的 CINAHL Complete 和 APA PsychInfo 进行了电子检索。共有 28 项研究符合纳入标准。通过主题分析得出了参与的新主题和定义，包括：(1) 接触（通过探视、打电话或写信）；(2) 参与护理活动（工具性/日常生活活动）；(3) 规划和监控护理（了解健康和治疗变化、与护理人员合作、确保充分护理和决策）；以及 (4) 支持住院患者（宣传、社会情感支持和经济支持）。此外，目前用于衡量家庭参与的心理测量工具有限。这些局限性阻碍了针对家庭参与的研究进展。

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来源期刊

Journal of Applied Gerontology GERONTOLOGY-

CiteScore

5.10

自引率

13.30%

发文量

202

期刊介绍： The Journal of Applied Gerontology (JAG) is the official journal of the Southern Gerontological Society. It features articles that focus on research applications intended to improve the quality of life of older persons or to enhance our understanding of age-related issues that will eventually lead to such outcomes. We construe application broadly and encourage contributions across a range of applications toward those foci, including interventions, methodology, policy, and theory. Manuscripts from all disciplines represented in gerontology are welcome. Because the circulation and intended audience of JAG is global, contributions from international authors are encouraged.