Balancing life with type 1 diabetes mellitus: A qualitative study of jordanian adolescents.

Khulood Kayed Shattnawi, Sumiah Mohammed Mahassneh
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Abstract

Objectives: To explore the lived experiences of Jordanian adolescents with type 1 diabetes mellitus (T1DM) and identify their specific needs.

Methods: Qualitative interviews were conducted with 10 Jordanian adolescents. Thematic analysis was used to identify key themes.

Results: Three main themes emerged: (1) Living with diabetes as a constant struggle, including emotional turbulence, social withdrawal, and difficulty with treatment regimens; (2) Restoring balance in life through social support, following treatment protocols, and accepting the disease; and (3) Adolescents' needs for a better environment, including improved knowledge, resources, and social integration.

Conclusions: Adolescents with T1DM face significant challenges, including emotional distress, social isolation, and difficulties managing their disease. This study provides valuable insights into their experiences and highlights the importance of comprehensive support.

Practice implications: To effectively support adolescents with T1DM, healthcare providers and educators should focus on providing emotional support, social support, and practical assistance. Additionally, improving knowledge and awareness about T1DM among adolescents and their families is crucial, as well as increasing access to resources that can help them manage their disease and live fulfilling lives.

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平衡 1 型糖尿病患者的生活:约旦青少年定性研究。
目的探索约旦 1 型糖尿病(T1DM)青少年的生活经历,并确定他们的具体需求:方法:对 10 名约旦青少年进行定性访谈。采用主题分析法确定关键主题:结果:出现了三大主题:(1) 糖尿病患者的生活是一场持续的斗争,包括情绪波动、社会退缩和难以接受治疗方案;(2) 通过社会支持、遵循治疗方案和接受疾病来恢复生活平衡;(3) 青少年需要更好的环境,包括改善知识、资源和社会融合:患有 T1DM 的青少年面临着巨大的挑战,包括情绪困扰、社会隔离和疾病管理方面的困难。本研究为了解他们的经历提供了宝贵的见解,并强调了全面支持的重要性:为了有效地为患有 T1DM 的青少年提供支持,医疗服务提供者和教育工作者应重点提供情感支持、社会支持和实际帮助。此外,提高青少年及其家人对 T1DM 的了解和认识也至关重要,同时还应增加获取资源的途径,以帮助他们控制病情并过上充实的生活。
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
291
审稿时长
65 days
期刊介绍: Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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