Older Autistic People, Access and Experiences of Services, and the Factors That Affect This.

Marion Hersh, Panda Mery, Michael Dawson
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Abstract

This paper presents new empirical data obtained from interviews and focus groups on older (50 and over) autistic people's experiences of accessing a variety of services. The involvement of older autistic people and giving voice to their experiences was central to all aspects of the research process. This work makes a significant contribution to the scarce literature on older autistic people. In particular, it discusses the factors that act as barriers and enablers to the access to and productive use of services, the strategies used by participants to manage and improve their experiences, and the success of these strategies. It shows older autistic people as autonomous adults and active protagonists in their own lives, taking action to overcome the barriers they experience to accessing services on the same terms as everyone else, but that lack of understanding and support from service providers and the general public can undermine their strategies. Finally, this work provides a series of recommendations for service providers to improve (older) autistic people's service access and experiences.

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老年自闭症患者、获得服务的机会和经历以及影响因素。
本文介绍了通过访谈和焦点小组获得的新的实证数据,内容涉及老年自闭症患者(50 岁及以上)获得各种服务的经历。老年自闭症患者的参与和表达他们的经历是研究过程的核心。这项工作为有关老年自闭症患者的稀缺文献做出了重要贡献。特别是,它讨论了获得服务和有效利用服务的障碍和促进因素、参与者管理和改善其经历的策略以及这些策略的成功之处。作品表明,老年自闭症患者是自主的成年人,是自己生活中的积极参与者,他们会采取行动,克服在与其他人同等条件下获得服务时遇到的障碍,但缺乏服务提供者和公众的理解和支持可能会破坏他们的策略。最后,本研究为服务提供者提供了一系列建议,以改善(老年)自闭症患者获得服务的途径和体验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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期刊介绍: International Journal of Environmental Research and Public Health (IJERPH) (ISSN 1660-4601) is a peer-reviewed scientific journal that publishes original articles, critical reviews, research notes, and short communications in the interdisciplinary area of environmental health sciences and public health. It links several scientific disciplines including biology, biochemistry, biotechnology, cellular and molecular biology, chemistry, computer science, ecology, engineering, epidemiology, genetics, immunology, microbiology, oncology, pathology, pharmacology, and toxicology, in an integrated fashion, to address critical issues related to environmental quality and public health. Therefore, IJERPH focuses on the publication of scientific and technical information on the impacts of natural phenomena and anthropogenic factors on the quality of our environment, the interrelationships between environmental health and the quality of life, as well as the socio-cultural, political, economic, and legal considerations related to environmental stewardship and public health. The 2018 IJERPH Outstanding Reviewer Award has been launched! This award acknowledge those who have generously dedicated their time to review manuscripts submitted to IJERPH. See full details at http://www.mdpi.com/journal/ijerph/awards.
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