{"title":"Experiences of siblings of individuals with developmental disabilities: A meta-synthesis of qualitative studies.","authors":"Hooyun Lee, Kyua Kim, Hyelim Kim, Eun Kyoung Choi","doi":"10.1016/j.dhjo.2024.101770","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>While the impact of developmental disabilities (DD) on the entire family is increasingly recognized, the experiences of typically developing (TD) siblings often remain overlooked. Recently, an understanding of siblings' experiences has been developed through qualitative studies.</p><p><strong>Objective: </strong>This review aims to synthesize existing qualitative evidence regarding the experiences of TD siblings of individuals with DD.</p><p><strong>Methods: </strong>A systematic search across four databases (PubMed, CINAHL, PsycINFO, and Web of Science) identified studies reporting empirical qualitative data on the experiences of TD siblings of adolescents and young adults with DD, including English studies from 2014 to 2023. A quality appraisal was performed using the Critical Appraisal Skill Programme (CASP) checklist. The data were synthesized using thematic synthesis.</p><p><strong>Results: </strong>Nine studies met the inclusion criteria. Six key themes and 13 subthemes were identified from the included articles. These themes included (i) encountered difficulties, (ii) intrapersonal response, (iii) interpersonal interaction, (iv) challenging family dynamics, (v) strategies and support, and (vi) accepting and adapting to my reality.</p><p><strong>Conclusions: </strong>This review synthesizes qualitative evidence on the experiences of TD siblings, highlighting how their situation shapes their lives. The findings suggest that TD siblings of individuals with DD experience difficulty due to their sibling's disability. These experiences influence various aspects of their lives, including personal, school/work, and family dynamics, ultimately affecting TD siblings' adaptation processes. Our findings emphasize the need for targeted interventions to support the psychological well-being of TD siblings of individuals with DD.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101770"},"PeriodicalIF":3.7000,"publicationDate":"2024-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Disability and Health Journal","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1016/j.dhjo.2024.101770","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
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Abstract
Background: While the impact of developmental disabilities (DD) on the entire family is increasingly recognized, the experiences of typically developing (TD) siblings often remain overlooked. Recently, an understanding of siblings' experiences has been developed through qualitative studies.
Objective: This review aims to synthesize existing qualitative evidence regarding the experiences of TD siblings of individuals with DD.
Methods: A systematic search across four databases (PubMed, CINAHL, PsycINFO, and Web of Science) identified studies reporting empirical qualitative data on the experiences of TD siblings of adolescents and young adults with DD, including English studies from 2014 to 2023. A quality appraisal was performed using the Critical Appraisal Skill Programme (CASP) checklist. The data were synthesized using thematic synthesis.
Results: Nine studies met the inclusion criteria. Six key themes and 13 subthemes were identified from the included articles. These themes included (i) encountered difficulties, (ii) intrapersonal response, (iii) interpersonal interaction, (iv) challenging family dynamics, (v) strategies and support, and (vi) accepting and adapting to my reality.
Conclusions: This review synthesizes qualitative evidence on the experiences of TD siblings, highlighting how their situation shapes their lives. The findings suggest that TD siblings of individuals with DD experience difficulty due to their sibling's disability. These experiences influence various aspects of their lives, including personal, school/work, and family dynamics, ultimately affecting TD siblings' adaptation processes. Our findings emphasize the need for targeted interventions to support the psychological well-being of TD siblings of individuals with DD.
背景：虽然发育障碍（DD）对整个家庭的影响越来越被认识到，但正常发育（TD）兄弟姐妹的经历往往被忽视。最近，通过定性研究，对兄弟姐妹经历的理解得到了发展。方法：系统检索四个数据库（PubMed、CINAHL、PsycINFO和Web of Science），确定报告了2014年至2023年青少年和年轻成年DD患者兄弟姐妹TD经历的经验定性数据的研究，包括英语研究。使用关键评估技能程序（CASP）检查表进行质量评估。采用专题综合法对数据进行综合。结果：9项研究符合纳入标准。从所列文章中确定了6个关键主题和13个次级主题。这些主题包括(i)遇到的困难，（ii）个人反应，（iii）人际互动，（iv）挑战家庭动态，(v)策略和支持，以及（vi）接受和适应我的现实。结论：本综述综合了TD兄弟姐妹经历的定性证据，突出了他们的处境如何影响他们的生活。研究结果表明，患有DD的个体的TD兄弟姐妹由于兄弟姐妹的残疾而经历困难。这些经历影响了他们生活的各个方面，包括个人、学校/工作和家庭动态，最终影响了TD兄弟姐妹的适应过程。我们的研究结果强调需要有针对性的干预措施来支持DD患者的兄弟姐妹的心理健康。
期刊介绍：
Disability and Health Journal is a scientific, scholarly, and multidisciplinary journal for reporting original contributions that advance knowledge in disability and health. Topics may be related to global health, quality of life, and specific health conditions as they relate to disability. Such contributions include:
• Reports of empirical research on the characteristics of persons with disabilities, environment, health outcomes, and determinants of health
• Reports of empirical research on the Systematic or other evidence-based reviews and tightly conceived theoretical interpretations of research literature
• Reports of empirical research on the Evaluative research on new interventions, technologies, and programs
• Reports of empirical research on the Reports on issues or policies affecting the health and/or quality of life for persons with disabilities, using a scientific base.
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