A journey toward an open data culture through transformation of shared data into a data resource

Abstract

Abstract The transition to open data practices is straightforward albeit surprisingly challenging to implement largely due to cultural and policy issues. A general data sharing framework is presented along with two case studies that highlight these challenges and offer practical solutions that can be adjusted depending on the type of data collected, the country in which the study is initiated, and the prevailing research culture. Embracing the constraints imposed by data privacy considerations, especially for biomedical data, must be emphasized for data outside of the United States until data privacy law(s) are established at the Federal and/or State level.