当家庭生活加重癌症护理者在姑息治疗中的负担时。

IF 2.6 3区 医学 Q1 FAMILY STUDIES Journal of Family Nursing Pub Date : 2023-08-01 Epub Date: 2023-05-16 DOI:10.1177/10748407231167545
Jacquelyn J Benson, Karla T Washington, Olivia J Landon, Daphne E Chakurian, George Demiris, Debra Parker Oliver
{"title":"当家庭生活加重癌症护理者在姑息治疗中的负担时。","authors":"Jacquelyn J Benson, Karla T Washington, Olivia J Landon, Daphne E Chakurian, George Demiris, Debra Parker Oliver","doi":"10.1177/10748407231167545","DOIUrl":null,"url":null,"abstract":"<p><p>The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver's social network-especially other family-is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: <i>failed support, relational tensions, denial</i>, and <i>additional care work</i>. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":null,"pages":null},"PeriodicalIF":2.6000,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10330805/pdf/","citationCount":"0","resultStr":"{\"title\":\"When Family Life Contributes to Cancer Caregiver Burden in Palliative Care.\",\"authors\":\"Jacquelyn J Benson, Karla T Washington, Olivia J Landon, Daphne E Chakurian, George Demiris, Debra Parker Oliver\",\"doi\":\"10.1177/10748407231167545\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver's social network-especially other family-is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: <i>failed support, relational tensions, denial</i>, and <i>additional care work</i>. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.</p>\",\"PeriodicalId\":50193,\"journal\":{\"name\":\"Journal of Family Nursing\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.6000,\"publicationDate\":\"2023-08-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10330805/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Family Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10748407231167545\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/5/16 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"FAMILY STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Family Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10748407231167545","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/5/16 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"FAMILY STUDIES","Score":null,"Total":0}
引用次数: 0

摘要

照顾晚期癌症家庭成员的困难是有目共睹的。来自照顾者的社会网络(尤其是其他家人)的支持对于减轻照顾者的负担和心理压力至关重要。然而,家庭环境并不总是支持性的,家庭冲突和对支持不满意的报告屡见不鲜。尽管人们知道家庭关系是复杂的,但对晚期癌症患者护理者在日常生活中面临的家庭压力类型却知之甚少。为了填补这一空白,研究人员运用 ABCX 双模型的概念,对 63 名接受门诊姑息治疗的癌症患者护理者的访谈进行了反思性主题分析。研究发现了家庭压力的四个主题:支持失败、关系紧张、否认和额外的护理工作。研究结果为临床评估和护理人员干预措施的制定提供了参考,揭示了衡量成年癌症患者护理人员的家庭生活琐事的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
When Family Life Contributes to Cancer Caregiver Burden in Palliative Care.

The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver's social network-especially other family-is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: failed support, relational tensions, denial, and additional care work. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
4.00
自引率
9.70%
发文量
40
审稿时长
>12 weeks
期刊介绍: Journal of Family Nursing (JFN) is a peer-reviewed, quarterly journal of nursing research, practice, education, and policy issues, as well as empirical and theoretical analyses on the subject of family health. Its interdisciplinary, international, and collaborative perspectives examine cultural diversity and families across the life cycle. This journal is a member of the Committee on Publication Ethics (COPE).
期刊最新文献
Family Nursing Network Caring for Families of Patients With Acquired Brain Injury Early During Hospitalization: A Feasibility Study of the SAFIR© Intervention What Is the Most Compelling Global Family Nursing Clinical Skill? Curious Compassion. Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant. The Impact of the COVID-19 Pandemic on the Paternal Parenting Experience: A Scoping Review.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1