解释癌症儿童父母的精神调整过程:一项质性研究。

Shahnaz Salawati Ghasemi, Mohammad Iraj Bagheri-Saveh, Mahboubeh Shali, Soma Zakariaee, Neda Sheikh Zakaryaee
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引用次数: 1

摘要

孩子患癌症会影响家庭成员,降低他们的生活质量。考虑到精神可以带来平静、对未来的希望和对疾病的接受,本研究旨在解释癌症儿童父母的精神护理过程。方法:本研究采用定性方法和扎根理论方法。本研究的背景是肿瘤和放疗病房,政府肿瘤诊所和儿科医院。采用有目的和理论抽样方法,选择了22名参与者(8名母亲、3名有儿童癌症经历的父亲和11名在伊朗不同儿科医院肿瘤科工作的个人),并进行了个人和半结构化访谈。结果:通过数据分析,建立了“通往灵性之桥”的核心变量,该变量包含“不稳定的情况”、“灵性”、“穿越坎坷的道路”、“多维支持”和“反思”五个主要类别。结论:由于儿童癌症对父母的重大影响,以及人们在危急和压力情况下的精神需求增加,关注精神过程对于管理儿童疾病造成的条件和帮助父母在卫生保健中心制定全面的精神护理计划至关重要。伊朗的卫生保健系统目前缺乏精神护理,这就需要关注癌症儿童的父母这个问题。
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Explaining the Process of Spiritual Adjustment in Parents of a Child with Cancer: A Qualitative Study.

Introduction: Having a child with cancer impacts the family members and reduces their quality of life. Considering the fact that spirituality creates tranquility, hope for the future, and acceptance of the disease, this study aimed to explain the process of spiritual care in parents of a child with cancer. Methods: This study was carried out using a qualitative method and grounded theory approach. The setting of this research was oncology and radiotherapy wards, governmental oncology clinics and pediatric hospitals. Using purposive and theoretical sampling method, 22 participants (eight mothers, three fathers with childhood cancer experience and 11 individuals working in oncology departments of different Iranian pediatric hospitals) were selected and individual and semi-structured interviews were conducted. Results: The data analysis led to the creation of a core variable of "bridge towards spirituality" which included five main categories of "unstable situation", "spirituality," "crossing rocky path", "multi-dimensional support", and "rethink". Conclusion: Due to the significant impacts of a child's cancer on parents and the fact that people's spiritual needs increase in critical and stressful situations, paying attention to the spirituality process is essential for managing the conditions created by the child's disease and help parents through developing a comprehensive program of spiritual care in health care centers. Spiritual care is currently absent in the health care system of Iran, which necessitates attention to this issue in the parents of children with cancer.

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