“照顾自己的社区”:一项支持家庭照顾患有阿尔茨海默病的亲人的可行性研究。

IF 1.5 4区 医学 Q3 FAMILY STUDIES Family & Community Health Pub Date : 2022-10-01 DOI:10.1097/FCH.0000000000000333
Elena Gambella, Silvia Valenza, Maria Velia Giulietti, Cristina Gagliardi, Patrizia Civerchia, Paolo Fabbietti, Fabrizia Lattanzio, Giuseppe Pelliccioni
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引用次数: 0

摘要

这个试点项目的目的是支持那些在家照顾患有阿尔茨海默氏症的亲人的家庭。研究人员招募了14对“患有痴呆症的照顾者所爱的人”,并将他们分为实验组(n = 7)和对照组(n = 7)。实验组参加了培训课程、阿尔茨海默病咖啡馆、照顾者自助小组,并得到了志愿者和专业护士的家访支持,而对照组的两对则参加了标准的干预。为了研究这种综合和跨专业的护理模式的效果,护理人员完成了护理人员负担量表和2个特别结构化问题,以评估二人组的生活质量是否发生了变化。实验组照顾者完成第6版自评单一问卷(Q-UAV6)。只有实验组的照顾者报告说,这对夫妇的负担明显减轻,生活质量也有所提高。他们也更能接受这种疾病,成为照顾亲人的专家,并改善了他们的关系。建立一个由专业人员、志愿者和家庭组成的综合服务网络,已被证明对支持那些在家照顾患有阿尔茨海默氏症的亲人的家庭是有用的。
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"The Community That Takes Care of Itself": A Feasibility Study to Support Families Caring for a Loved One With Alzheimer Disease.

This pilot project was aimed at supporting those families caring at home for loved ones suffering from Alzheimer dementia. Fourteen dyads of "caregivers-loved ones with dementia" were recruited and assigned either to the experimental group (n = 7) or to the control group (n = 7). The experimental group attended a training course, an Alzheimer Café, a self-help group for caregivers, and the support from a volunteer and professional nurse in-home visits, while the control group's dyads attended a standard intervention. To investigate the effects of this integrated and interprofessional model of care, caregivers completed the Caregiver Burden Inventory and 2 ad hoc structured questions to evaluate whether quality of life of the dyads was changed. Moreover, the caregivers of the experimental group completed the Self-Assessment Single Questionnaire, version 6 (Q-UAV6). Only caregivers of the experimental group reported a significant reduction in burden and an improved quality of life of the dyad. They also showed a greater acceptance of the disease, became experts in the care of their loved ones, and improved their relationship. The creation of a service integration network of professionals, volunteers, and families has been shown to be useful in supporting those families caring at home for loved ones suffering from Alzheimer dementia.

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来源期刊
CiteScore
2.70
自引率
4.30%
发文量
69
期刊介绍: Family & Community Health is a practical quarterly which presents creative, multidisciplinary perspectives and approaches for effective public and community health programs. Each issue focuses on a single timely topic and addresses issues of concern to a wide variety of population groups with diverse ethnic backgrounds, including children and the elderly, men and women, and rural and urban communities.
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