{"title":"患者和非正规护理人员参与研究框架》(PAICPAIR)第 2 部分。","authors":"Katrine Staats, Ellen Karine Grov, Oscar Tranvåg","doi":"10.1097/ANS.0000000000000474","DOIUrl":null,"url":null,"abstract":"<p><p>Previously, we described the development of the first part of the framework of Patient and Informal Caregiver Participation in Research (PAICPAIR part 1) and how it was implemented in the empirical study Dying With Dignity . Currently, we present our choices and experiences gained in PAICPAIR part 2, highlighting how PAICPAIR guided us as a modifiable and adaptable framework, with a particular emphasis on identifying and meeting the individual needs of our vulnerable coresearchers. This framework can be used as a methodological approach and study design in future research and inspire researchers to include patients receiving palliative care and informal caregivers-as coresearchers.</p>","PeriodicalId":50857,"journal":{"name":"Advances in Nursing Science","volume":" ","pages":"188-201"},"PeriodicalIF":1.6000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 2.\",\"authors\":\"Katrine Staats, Ellen Karine Grov, Oscar Tranvåg\",\"doi\":\"10.1097/ANS.0000000000000474\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Previously, we described the development of the first part of the framework of Patient and Informal Caregiver Participation in Research (PAICPAIR part 1) and how it was implemented in the empirical study Dying With Dignity . Currently, we present our choices and experiences gained in PAICPAIR part 2, highlighting how PAICPAIR guided us as a modifiable and adaptable framework, with a particular emphasis on identifying and meeting the individual needs of our vulnerable coresearchers. This framework can be used as a methodological approach and study design in future research and inspire researchers to include patients receiving palliative care and informal caregivers-as coresearchers.</p>\",\"PeriodicalId\":50857,\"journal\":{\"name\":\"Advances in Nursing Science\",\"volume\":\" \",\"pages\":\"188-201\"},\"PeriodicalIF\":1.6000,\"publicationDate\":\"2024-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Advances in Nursing Science\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1097/ANS.0000000000000474\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/12/29 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Nursing Science","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/ANS.0000000000000474","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/12/29 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 2.
Previously, we described the development of the first part of the framework of Patient and Informal Caregiver Participation in Research (PAICPAIR part 1) and how it was implemented in the empirical study Dying With Dignity . Currently, we present our choices and experiences gained in PAICPAIR part 2, highlighting how PAICPAIR guided us as a modifiable and adaptable framework, with a particular emphasis on identifying and meeting the individual needs of our vulnerable coresearchers. This framework can be used as a methodological approach and study design in future research and inspire researchers to include patients receiving palliative care and informal caregivers-as coresearchers.
期刊介绍:
Consistently ranked as one of the most-read and most assigned journals by faculties of graduate programs in nursing, Advances in Nursing Science (ANS) is intellectually challenging, innovative and progressive, and features articles from a wide range of scholarly traditions. The journal particularly encourages works that speak to the need for global sustainability and that take an intersectional approach, recognizing class, color, sexual and gender identity, and other dimensions of human experience related to health. Articles in ANS are peer-reviewed and chosen for their pioneering perspectives and for their significance in contributing the evolution of the discipline of nursing.