脑瘫患儿的生活对母亲生活质量的影响:图兹拉州/波斯尼亚和黑塞哥维那。

Alma Glinac, Selma Sinanovic, Lejla Glinac, Lejla Matovic
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引用次数: 0

摘要

本研究旨在探讨脑瘫儿童的生活质量对母亲生活质量的影响。共有 122 名受试者参加了研究。儿科受试者生活质量评估通用量表 PedsQLTM 4.0 和特定模块 PedsQLTM 3.0 脑瘫 3.0 版用于评估 CP 儿童的生活质量,母亲的生活质量则通过 PedsQLTM 2.0 家庭影响模式问卷进行评估。在本研究中,母亲的生活质量受儿童身体和社会功能的影响,而情感功能的影响尚未得到证实。CP患儿所面临的特殊困难对母亲整体生活质量的影响在统计学上有显著意义,这些困难存在于以下领域:日常活动、移动和平衡以及营养。对患有脊柱侧弯症的母亲和儿童的生活质量进行评估应成为临床评估的一个组成部分,因为这将使专业人员能够更成功地以服务、治疗方法和预防方案的形式参与提供专业援助。
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The impact of life of a child with cerebral palsy on the quality of life of mothers: Tuzla Canton/Bosnia and Herzegovina.

The aim of the study was to examine the impact of the quality of life of children with cerebral palsy (CP) on the quality of life of mothers. A total of 122 subjects participated in the study. The general quality of life assessment of paediatric subjects PedsQLTM 4.0 Generic Scale and the specific PedsQLTM 3.0 Module Cerebral Palsy Version 3.0 were used to assess the quality of life of children with CP, and the quality of life of mothers was assessed with the PedsQLTM 2.0 Family Impact Mode Questionnaire. In the present study, the quality of life of mothers is influenced by the physical and social functioning of the child, while the impact of emotional functioning has not been proven. The specific difficulties faced by children with CP, which have a statistically significant effect on the overall quality of life of the mother, are present in the domains: daily activities, mobility and balance and nutrition. The assessment of the quality of life of mothers and children with CP should be an integral part of the clinical assessment, as this will enable professionals to participate more successfully in providing professional assistance in the form of services, therapeutic approaches and prevention programs.

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