肾衰竭患者的决策指导:一个案例研究。

IF 1.5 4区 医学 Q3 NURSING Journal of renal care Pub Date : 2023-02-03 DOI:10.1111/jorc.12459
Louise Engelbrecht Buur MSc, Hilary Louise Bekker PhD, Caroline Løntoft Mathiesen BSN, Lotte Timmerby Holm BSN, Ida Riise BSN, Jeanette Finderup PhD, Dawn Stacey PhD
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引用次数: 0

摘要

背景:对于面临临终关怀决定的肾衰竭患者,决策指导的有用性知之甚少。目的:调查肾衰竭患者接受临终关怀决策指导的经验。设计:我们进行了一项前瞻性案例研究,受时间(2021年9月至12月)、地点(一个肾脏病科)的限制,并以渥太华决策支持框架为指导。参与者:面临临终关怀决定的肾衰竭成年人。测量方法:一名接受过决策指导培训的护士通过SURE测试筛选未满足的决策需求,并使用渥太华个人决策指南提供决策指导。训练结束后,参与者使用SURE测试重新筛选,并接受访谈以探讨他们在决策指导方面的经验。对SURE测试结果的变化进行描述性分析,并对访谈进行系统的文本浓缩分析。使用决策支持分析工具对记录的决策指导课程进行内容分析。结果:对4例成人肾功能衰竭患者进行决策指导。前sure测试得分中位数为2.5(范围2-4),后测试得分中位数为3(范围3-4),表明决策需求减少。与会者说,决策指导概述了可供考虑的备选方案的特点,确定了与亲属和保健专业人员进一步讨论的剩余决策需要,并澄清了下一步的步骤。决策支持分析工具得分中位数为9(范围8-9)。结论:经过决策指导,结果表明,参与者经历较少的决策需求,似乎更清楚决策过程的下一步。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Decision coaching for people with kidney failure: A case study

Background

Little is known about the usefulness of decision coaching for people with kidney failure facing decisions about end-of-life care.

Objectives

To investigate experiences of people with kidney failure who received decision coaching for end-of-life care decisions.

Design

We conducted a prospective case study bound by time (September to December 2021), location (one nephrology department), and guided by the Ottawa Decision Support Framework.

Participants

Adults with kidney failure facing end-of-life care decisions.

Measurements

A nurse trained in decision coaching screened for unmet decisional needs with the SURE test and provided decision coaching using the Ottawa Personal Decision Guide. Postcoaching, the participants were rescreened using the SURE test and interviewed to explore their experience with decision coaching. Change in SURE test findings was analysed descriptively and systematic text condensation was used for the analysis of interviews. Recorded decision coaching sessions underwent content analysis using the Decision Support Analysis Tool.

Results

Decision coaching was provided to four adults with kidney failure. Median pre-SURE test score was 2.5 (range 2–4) and posttest score was 3 (range 3–4), indicating a decrease in decisional needs. Participants described that decision coaching provided an overview of features of options to consider, identified remaining decisional needs for further discussion with relatives and health professionals and clarified next steps. Median Decision Support Analysis Tool score was 9 (range 8–9).

Conclusions

After decision coaching, results suggest that the participants experienced fewer decisional needs and seemed clearer about the next steps in the decision making process.

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来源期刊
Journal of renal care
Journal of renal care Nursing-Advanced and Specialized Nursing
CiteScore
3.50
自引率
5.30%
发文量
36
期刊介绍: The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.
期刊最新文献
Perspectives of Chinese nephrology nurses on discussing sexual dysfunction with patients receiving haemodialysis: A qualitative study Self-efficacy and home dialysis: An integrative review. Understanding nurses' perceptions of sexual health and function in people requiring haemodialysis. Issue Information: Journal of Renal Care 3/2024 Young adults with kidney failure lived experiences of kidney replacement therapy decision-making.
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