自我管理指导对系统性红斑狼疮患者健康结局的影响

Shimaa Mohamed Elghareeb, H. M. Mahmoud
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摘要

系统性红斑狼疮(SLE)是一种自身免疫性多系统炎症性慢性疾病,伴随着严重的发病率、死亡率和生活质量下降。适当的自我管理可以降低死亡率和残疾,提高生活质量,降低医疗费用,提高自我效能。目的:探讨自我管理指导对曼苏拉大学附属医院SLE患者健康结局和自我效能感的影响。研究设计:采用准实验设计。环境:该研究是在医学住院和门诊部门以及风湿病门诊诊所进行的,时间为周六、周二和周四。目的:选取实施自我管理指导前后住院的内科患者和内科及风湿科门诊患者65例为研究对象。该研究于2021年2月至2021年8月进行。工具:采用健康评估问卷和疲劳、疼痛严重程度健康结果问卷进行研究。结果:实施自我管理指导后,两组患者在疼痛程度、认知程度和总体健康状况方面的差异有高度统计学意义(P < 0.001)。结论:SLE患者实施指导后,在减轻疲劳、改善疼痛和残疾方面有积极作用。建议:需要在所有SLE诊所和部门开展一个患者教育项目,通过书面和示范指南来改善SLE患者的护理。
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Influence of Self-Management Instruction on Outcomes of Health for Systemic Lupus Erythematosus Patients
Introduction: Systemic lupus erythematosus (SLE) is an autoimmune multisystem inflammatory, chronic disease that is accompanied by momentous morbidity, mortality, and reduced quality of life. Proper self-management reduces mortality and disability, improves quality of life, and decreases healthcare expenses and improves self-efficacy. Aim: This study objective to evaluate the influence of self-management instruction on, outcome of health and self-efficacy for SLE patients at Mansoura University Hospital. Design of study: A quasiexperimental design was utilized. Setting: The study was conducted at medical inpatient and outpatient departments in addition to rheumatology outpatient clinics on Saturdays, Tuesdays, and Thursdays. Subject: A purposive sample of 65 patients admitted to inpatients of medical departments and medical and rheumatology outpatients before and after implementation of self-management instruction were included in the study. The study was conducted between February 2021 and August 2021. Tool: A questionnaire on health assessment and questionnaire on health outcomes in the fatigue and pain severity scales were used in the study. Results: After implementation of self-management instruction, there were a highly statistically significant difference as regards severe pain, awareness, and generalized health status (P < 0.001). Conclusion: There were positive effects on SLE patients post implementation of instruction in decreasing fatigue and improving of pain and disability. Recommendation: An education program of patient to improve care of SLE patients by written and demonstrated guidelines need to be accessible in all SLE clinics and departments.
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