多发性硬化症患者的疲劳与自我管理

Afnan Seraj Jamal Shawli, I. Abdulmutalib, E. A. Nagshabandi
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引用次数: 1

摘要

疲劳被认为是多发性硬化症患者最明显的症状,88%的患者报告了疲劳,并且对生活的各个阶段都有重大影响,例如日常生活活动或社会心理/精神功能的改变。疲劳的发病机制及其对自我管理的影响仍然知之甚少。研究的目的是评估多发性硬化症患者的疲劳和自我管理。本研究采用定量描述性相关设计。该研究于2018年1月至3月在吉达市的阿卜杜勒阿齐兹国王大学医院和法赫德国王武装部队医院进行,从门诊和住院病房收集数据。50名多发性硬化症患者的方便样本。主要通过一种工具收集数据,它由三部分组成;第一部分,研究者构建的社会人口学和临床数据。部分П,修正疲劳冲击量表;评估疲劳对多发性硬化症患者身体、认知和社会心理功能的影响。部分ПІ,多发性硬化症自我管理量表修订;对多发性硬化症患者的自我管理知识和行为进行多维度的心理测量评估。研究结果显示,多发性硬化症患者疲劳量表与总体自我管理之间存在显著的负相关(p值为0.019)。此外,自我管理因素量表与多发性硬化症患者整体疲劳之间存在显著的负相关(p值为0.019)。综上所述,多发性硬化症患者整体疲劳程度与整体自我管理水平呈负相关,疲劳程度越高,自我管理水平越低。建议鼓励政府政策制定者和沙特社区的其他决策者定期制定有关MS自我管理的健康教育培训计划,并提供适当的环境或设施来开展此类计划,其中护士通过健康教育发挥关键作用,并与其他医疗保健系统合作。
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Fatigue and Self-management among Multiple Sclerosis Patients
Fatigue is considered as the most revealed symptoms in multiple sclerosis patients, reported by 88% of patients and has significant impact on all stages of life such as altering in daily living activity or psychosocial/mental functions. The pathogenesis of fatigue remain poorly understood and how its impact on self-management. The aim of study was to assess fatigue and self management among multiple sclerosis patients. A quantitative descriptive correlational design was used in this study. The study was conducted at both King Abdulaziz University Hospital and King Fahad Armed Forces Hospitals in Jeddah City from January till March 2018, data collected from outpatients’ clinic and Inpatients’ medical-wards. A convenience sample of 50 Multiple Sclerosis patients. Data was collected through the main one tool, it consists of three parts; Part I, Socio-demographic and clinical data constructed by the researchers. Part П, Modified Fatigue Impact scale; to assess the Impact of fatigue on physical, cognitive, and psychosocial functioning in patient with Multiple Sclerosis.. Part ПІ, Multiple Sclerosis Self Management Scale Revised; to provide a multidimensional and psychometrically assessment of self-management knowledge and behavior among Multiple Sclerosis patients. The study results showed there was a statistically significant negative correlations between fatigue subscales and overall self-management among Multiple Sclerosis patients with p-value (.019). Also, there was a statistically significant negative correlations between self-management factor scales and overall fatigue among Multiple Sclerosis patients with p-value (.019). It was concluded that there was a negative correlations between overall fatigue and overall self-management among Multiple Sclerosis patients, whenever fatigue severity increases, self-management decreases. It was a recommendation to encourage governmental policy and other decision makers in the Saudi community to develop periodically structure health education training program regarding self-management in MS and provide appropriate environments or facilities to conduct such programs, where nurses play a key role through health education and cooperate with other health care system.
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