The psychological impact of life-limiting conditions on the child

The children and families who speak in this chapter articulate concerns that are shared by many who are living with potentially life-shortening illnesses or conditions. They have all had to negotiate the changing, and often narrowing, of their world that the progressive losses that illness can bring and find ways to live with these changes and the ongoing uncertainty. The chapter explores how the availability of sensitive emotional support and psychological expertise throughout the course of the child’s and family`s journey can bring much comfort, ease suffering and distress, and even aspire to enable growth in the face of enormous challenge.