基因组数据使用管理的障碍

Muhammad Naveed
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引用次数: 3

摘要

我们的基因组决定了我们的外貌、性别、疾病、对药物的反应等等。它不仅包含了我们自己的信息,也包含了我们的亲戚、过去的几代人和未来的几代人的信息。这为保护隐私和管理基因组数据的使用带来了许多政策和技术挑战。在本文中,我们确定了基因组数据的各种特征,使其使用管理非常具有挑战性和不同于其他类型的数据。我们还描述了一些潜在的解决方案,并对基因组数据的使用提出了一些建议。
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Hurdles for Genomic Data Usage Management
Our genome determines our appearance, gender, diseases, reaction to drugs, and much more. It not only contains information about us but also about our relatives, past generations, and future generations. This creates many policy and technology challenges to protect privacy and manage usage of genomic data. In this paper, we identify various features of genomic data that make its usage management very challenging and different from other types of data. We also describe some ideas about potential solutions and propose some recommendations for the usage of genomic data.
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