复述一个人的生活故事——叙述如何提高慢性语言障碍患者的生活质量

S. Corsten, Friedericke Hardering
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引用次数: 1

摘要

最近在基于叙事的医学领域的研究已经调查了使用疾病叙事来刺激应对过程的有效性。本章探讨了叙事方法在治疗失语症患者中的应用,失语症是一种神经语言障碍,其中许多人经历了社会参与减少和身份改变。虽然生活故事的工作可以支持理解的过程,但由于失语症患者的语言能力受损,只有少数研究使用传记叙事的方法。本章描述了一种改编的传记叙事干预,旨在帮助身份重新谈判和社会参与。为了展示与干预相关的好处,以及参与者如何通过这种方法改变自我意识,本章检查了一项对27名失语症患者的研究。它涵盖了这些发现如何为未来的工作提供基础,使用传记叙事干预来影响慢性病患者的生活质量和身份重新协商。
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Retelling one’s life story—how narratives improve quality of life in chronic language impairment
Recent research in the field of narrative-based medicine has investigated the effectiveness of using illness narratives to stimulate coping processes. This chapter examines the utilization of the narrative approach in treating persons with aphasia—a neurological language disorder—many of whom experience reduced social participation and a change in identity. Although life-story work can support processes of sense-making, only a few studies use a biographic–narrative approach in aphasic patients due to their impaired language abilities. The chapter describes an adapted biographic-narrative intervention developed to assist with identity renegotiation and social participation. In order to show the benefits associated with the intervention and how the participants’ sense of self changed through the approach, the chapter examines a study with 27 aphasic people. It covers how the findings provide foundations for future work using biographic–narrative interventions to influence quality of life and identity renegotiation in people with chronic diseases.
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