多学科康复对ehers - danlos和behaperet综合征患者的影响:根据叙事医学的范例病例报告。

IF 2.1 4区 医学 Q1 REHABILITATION Disability and Rehabilitation Pub Date : 2024-10-01 Epub Date: 2023-11-19 DOI:10.1080/09638288.2023.2283104
Alessandro de Sire, Nicola Marotta, Vera Drago Ferrante, Dario Calafiore, Antonio Ammendolia
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引用次数: 0

摘要

目的:叙事医学补充了以临床为中心的方法,以分析和卫生方面为重点,以疾病和障碍为中心的模型,分别处理个人应对和社会对疾病的感知。多动性Ehlers- Danlos综合征和behet病是两种罕见的多系统慢性疾病,经历了无数的临床症状,心理困扰和生活质量差。本报告的目的是根据叙事医学描述多学科康复干预的应用。病例描述和干预:我们收治了一位35岁的女性,她有23年的多动性埃勒-丹洛斯综合征和behaperet病的病史。通过患者的感受和预期的短期、中期和长期目标,实施和描述了多模式康复方法。此外,她定期与治疗师面谈,报告自己的感受。病史:患者就诊32周。干预后立即记录疼痛减轻和功能改善。结语:叙事不仅仅是对疾病经历的一种诠释,而是对患者和医护人员对故事的重新诠释的结果。这门学科通过关注并甚至在治疗阶段利用病人、家属和保健人员的故事,提供了丰富护理内容的机会,特别是在与慢性病康复相结合的情况下,使人们有机会根据受试者的不同观点确定一种量身定制的有效康复方法。
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Effects of multidisciplinary rehabilitation in a patient with Ehlers-Danlos and Behçet's syndromes: a paradigmatic case report according to the narrative medicine.

Purpose: Narrative Medicine complements the clinically centered approach, which focuses on the analytical and sanitary aspects, with the illness- and disorder- centered models, which deal respectively, with personal coping and social perception of a condition. Hypermobile Ehlers- Danlos Syndrome and Behçet's Disease are two rare multisystemic chronic disease experienced a myriad of clinical symptoms, psychological distress, and poor quality of life. The purpose of this report is to describe application of a multidisclipinary rehabilitation intervention according to the narrative medicine.

Case description and intervention: a 35-year-old woman with a 23-year history of Hypermobile Ehlers-Danlos Syndrome and Behçet's Disease was admitted. A multimodal rehabilitation approach was implemented and described through the patient's feelings and expected short-, medium-, and long- terms goals. Moreover, she reported her feeling with periodical interview by her therapist.

History patient: The patient was seen for 32 weeks. A decreased pain, as well as improved function was recorded immediately post-intervention.

Conclusion: Narration is not just an interpretation of the illness experience, but the result of reshaping the interpretations of the story that both patient and health professional. This discipline provides enrichment of care, especially when combined with rehabilitation in chronic disease, by paying attention to and using even in the therapeutic phase the stories of patients, family and health care personnel, giving the opportunity to define a tailored effectiveness rehabilitation approach at the light of the different points of view of the subjects.

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来源期刊
Disability and Rehabilitation
Disability and Rehabilitation 医学-康复医学
CiteScore
5.00
自引率
9.10%
发文量
415
审稿时长
3-6 weeks
期刊介绍: Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.
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