斯瓦蒂尼地区自闭症谱系障碍儿童家长的挑战与应对策略

IF 0.3 Q4 PSYCHOLOGY, CLINICAL Journal of Child and Adolescent Mental Health Pub Date : 2021-08-01 Epub Date: 2023-12-02 DOI:10.2989/17280583.2023.2259428
Fanele Nkonyane, Thavanesi Gurayah, Thanalutchmy Lingah
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引用次数: 0

摘要

背景:研究表明,自闭症谱系障碍(ASD)的衰弱效应不仅对孩子有影响,而且对父母和照顾者也有影响。本研究旨在探讨斯瓦蒂尼地区自闭症儿童家长面临的挑战及应对策略。方法:采用探索性、描述性质的研究,采用有目的的抽样对自闭症儿童的父母进行访谈。数据收集使用两个焦点小组,三个双人组和两个半结构化访谈。这项研究有18名参与者。数据通过主题分析进行解释,并根据Lazarus和Folkman的压力和应对的交易模型进行考虑。结果:主题与本研究的目的一致,即“自闭症儿童父母的挑战”和“自闭症儿童父母的应对策略”。重大的个人和社会困难,ASD症状的严重性,以及健康和教育系统的挑战是“父母的挑战”主题下确定的子主题。从“应对策略”主题衍生出的子主题为适应性应对和非适应性应对。与适应性应对相关的因素包括接受自闭症谱系障碍诊断、对上帝的乐观和信仰、社会支持和庆祝里程碑。适应不良的应对策略包括使用体罚、回避、社交退缩和把孩子关在家里。结论:提出的建议包括加强对ASD的研究,提高社区对ASD的认识,以及培训ASD领域的专业人员。
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Challenges and coping strategies of parents of children with autism spectrum disorder in Eswatini.

Background: Research shows that the debilitating effects of autism spectrum disorder (ASD) not only have an impact on the child, but on the parents and caregivers as well. This study aimed to explore the challenges and coping strategies of parents of children with ASD in Eswatini.Methodology: An exploratory, descriptive qualitative study that used purposive sampling to interview parents of children with ASD was utilised. Data were gathered using two focus groups, three dyads, and two semi-structured interviews. There were 18 participants in this study. Data were interpreted by thematic analysis, and considered according to Lazarus and Folkman's Transactional Model of Stress and Coping.Findings: The themes were in alignment with the aim of this study, namely the "challenges of parents of children with ASD" and "coping strategies of parents of children with ASD". Significant personal and societal difficulties, the severity of the symptoms of ASD, and challenges in the health and education systems were subthemes identified under the "challenges of parents" theme. The subthemes that emerged from the "coping strategies" theme were adaptive coping and maladaptive coping. Factors associated with adaptive coping included acceptance of the ASD diagnosis, optimism and faith in God, social support, and celebrating milestones. Maladaptive coping strategies encompassed using corporal punishment, avoidance, social withdrawal, and keeping the child locked in.Conclusion: Recommendations made to mitigate the challenges included strengthening research into ASD, increasing awareness in communities, and training professionals working in the field of ASD.

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来源期刊
CiteScore
3.60
自引率
0.00%
发文量
2
期刊介绍: The Journal of Child & Adolescent Mental Health publishes papers that contribute to improving the mental health of children and adolescents, especially those in Africa. Papers from all disciplines are welcome. It covers subjects such as epidemiology, mental health prevention and promotion, psychotherapy, pharmacotherapy, policy and risk behaviour. The journal contains review articles, original research (including brief reports), clinical papers in a "Clinical perspectives" section and book reviews. The Journal is published in association with the South African Association for Child and Adolescent Psychiatry and Allied Professions (SAACAPAP).
期刊最新文献
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