{"title":"单亲母亲对自闭症谱系障碍儿童的养育:一项定性的照片叙事研究","authors":"Rivka Hillel Lavian, Yael Kimhi, Tamar Shmuelovich","doi":"10.1111/1471-3802.12634","DOIUrl":null,"url":null,"abstract":"<p>Over the past few decades, there has been a shift from the traditional family structure, with more acceptance of different structures, including those led by single parents. This qualitative photo-narrative study aimed at making the voices of single mothers raising children with autism spectrum disorder (ASD) heard. According to the literature, parenting a child with a disability can be very stressful on several different levels. Seven single mothers living in southern Israel and parenting children with ASD told their life stories and took photographs depicting their motherhood experience. The data underwent thematic content analysis. The main themes that emerged were the shattering of the family dream, the mothers and the educational setting, the present in the shadow of the future, single parents' support resources and the mothers' search for meaning. The data demonstrated that the mothers' daily life was rife with challenges. Providing assistance and support during different stages, including diagnosis, educational transitions and daily struggles, as outlined in the Dual Process Model of Coping with Bereavement, was crucial. The mothers also stressed that they drew strength from their love for their child and their existing support systems.</p>","PeriodicalId":46783,"journal":{"name":"Journal of Research in Special Educational Needs","volume":null,"pages":null},"PeriodicalIF":1.3000,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Single mother parenting of children with autism spectrum disorder: A qualitative photo-narrative study\",\"authors\":\"Rivka Hillel Lavian, Yael Kimhi, Tamar Shmuelovich\",\"doi\":\"10.1111/1471-3802.12634\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>Over the past few decades, there has been a shift from the traditional family structure, with more acceptance of different structures, including those led by single parents. This qualitative photo-narrative study aimed at making the voices of single mothers raising children with autism spectrum disorder (ASD) heard. According to the literature, parenting a child with a disability can be very stressful on several different levels. Seven single mothers living in southern Israel and parenting children with ASD told their life stories and took photographs depicting their motherhood experience. The data underwent thematic content analysis. The main themes that emerged were the shattering of the family dream, the mothers and the educational setting, the present in the shadow of the future, single parents' support resources and the mothers' search for meaning. The data demonstrated that the mothers' daily life was rife with challenges. Providing assistance and support during different stages, including diagnosis, educational transitions and daily struggles, as outlined in the Dual Process Model of Coping with Bereavement, was crucial. The mothers also stressed that they drew strength from their love for their child and their existing support systems.</p>\",\"PeriodicalId\":46783,\"journal\":{\"name\":\"Journal of Research in Special Educational Needs\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2023-11-27\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Research in Special Educational Needs\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/1471-3802.12634\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Research in Special Educational Needs","FirstCategoryId":"1085","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/1471-3802.12634","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
Single mother parenting of children with autism spectrum disorder: A qualitative photo-narrative study
Over the past few decades, there has been a shift from the traditional family structure, with more acceptance of different structures, including those led by single parents. This qualitative photo-narrative study aimed at making the voices of single mothers raising children with autism spectrum disorder (ASD) heard. According to the literature, parenting a child with a disability can be very stressful on several different levels. Seven single mothers living in southern Israel and parenting children with ASD told their life stories and took photographs depicting their motherhood experience. The data underwent thematic content analysis. The main themes that emerged were the shattering of the family dream, the mothers and the educational setting, the present in the shadow of the future, single parents' support resources and the mothers' search for meaning. The data demonstrated that the mothers' daily life was rife with challenges. Providing assistance and support during different stages, including diagnosis, educational transitions and daily struggles, as outlined in the Dual Process Model of Coping with Bereavement, was crucial. The mothers also stressed that they drew strength from their love for their child and their existing support systems.
期刊介绍:
Journal of Research in Special Educational Needs (JORSEN) is an established online forum for the dissemination of international research on special educational needs. JORSEN aims to: Publish original research, literature reviews and theoretical papers on meeting special educational needs Create an international forum for researchers to reflect on, and share ideas regarding, issues of particular importance to them such as methodology, research design and ethical issues Reach a wide multi-disciplinary national and international audience through online publication Authors are invited to submit reports of original research, reviews of research and scholarly papers on methodology, research design and ethical issues. Journal of Research in Special Educational Needs will provide essential reading for those working in the special educational needs field wherever that work takes place around the world. It will be of particular interest to those working in: Research Teaching and learning support Policymaking Administration and supervision Educational psychology Advocacy.