单亲母亲对自闭症谱系障碍儿童的养育:一项定性的照片叙事研究

IF 1.3 Q3 EDUCATION, SPECIAL Journal of Research in Special Educational Needs Pub Date : 2023-11-27 DOI:10.1111/1471-3802.12634
Rivka Hillel Lavian, Yael Kimhi, Tamar Shmuelovich
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引用次数: 0

摘要

在过去的几十年里,传统的家庭结构发生了转变,人们更多地接受了不同的家庭结构,包括单亲家庭。这项定性的照片叙事研究旨在让抚养自闭症谱系障碍(ASD)儿童的单身母亲的声音被听到。根据文献,抚养一个残疾的孩子在几个不同的层面上都是非常有压力的。生活在以色列南部的7位单亲母亲讲述了她们的生活故事,并拍摄了她们为人母的经历。对数据进行专题内容分析。出现的主要主题是家庭梦想的破灭,母亲和教育环境,未来阴影下的现在,单亲父母的支持资源和母亲对意义的寻找。数据表明,母亲们的日常生活充满了挑战。在不同的阶段提供帮助和支持,包括诊断、教育过渡和日常斗争,正如应对丧恸的双重过程模型所概述的那样,是至关重要的。母亲们还强调,她们从对孩子的爱和现有的支持体系中获得了力量。
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Single mother parenting of children with autism spectrum disorder: A qualitative photo-narrative study

Over the past few decades, there has been a shift from the traditional family structure, with more acceptance of different structures, including those led by single parents. This qualitative photo-narrative study aimed at making the voices of single mothers raising children with autism spectrum disorder (ASD) heard. According to the literature, parenting a child with a disability can be very stressful on several different levels. Seven single mothers living in southern Israel and parenting children with ASD told their life stories and took photographs depicting their motherhood experience. The data underwent thematic content analysis. The main themes that emerged were the shattering of the family dream, the mothers and the educational setting, the present in the shadow of the future, single parents' support resources and the mothers' search for meaning. The data demonstrated that the mothers' daily life was rife with challenges. Providing assistance and support during different stages, including diagnosis, educational transitions and daily struggles, as outlined in the Dual Process Model of Coping with Bereavement, was crucial. The mothers also stressed that they drew strength from their love for their child and their existing support systems.

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来源期刊
CiteScore
3.00
自引率
6.70%
发文量
34
期刊介绍: Journal of Research in Special Educational Needs (JORSEN) is an established online forum for the dissemination of international research on special educational needs. JORSEN aims to: Publish original research, literature reviews and theoretical papers on meeting special educational needs Create an international forum for researchers to reflect on, and share ideas regarding, issues of particular importance to them such as methodology, research design and ethical issues Reach a wide multi-disciplinary national and international audience through online publication Authors are invited to submit reports of original research, reviews of research and scholarly papers on methodology, research design and ethical issues. Journal of Research in Special Educational Needs will provide essential reading for those working in the special educational needs field wherever that work takes place around the world. It will be of particular interest to those working in: Research Teaching and learning support Policymaking Administration and supervision Educational psychology Advocacy.
期刊最新文献
Issue Information Parents' lived experiences regarding the decision‐making process on reasonable accommodations for their child with SEN—An IPA analysis Trends in instructional technologies used in education of people with special needs due to intellectual disability and autism Teachers' relational competence towards students with neurodevelopmental symptoms: A microscopic relational analysis Theory is inclusive, practice is integrative? Discourses on inclusion in the education community
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