威尔士与自闭症》评论:与雄心相匹配的慈善事业的影响" 评论

IF 0.5 Q4 EDUCATION, SPECIAL Tizard Learning Disability Review Pub Date : 2023-12-15 DOI:10.1108/tldr-10-2023-0024
Catherine Storey
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引用次数: 0

摘要

目的 本文是一篇评论文章,旨在探讨摩根题为《威尔士与自闭症》一文中提出的主题:研究结果本文强调了利益相关者的参与与自闭症领域的政策和实践发生有意义的变化之间的联系。它强调了慈善家投资于循证支持的必要性,但也强调了识别和获取此类支持的困难。本文支持使用证据和差距图(EGMs)来提高自闭症研究和证据的可及性。原创性/价值虽然利益相关者在该领域的参与度在不断提高,令人鼓舞,但大多数证据都保存在学术期刊中,而这些期刊都有付费墙,因此许多自闭症患者、他们的家人、照护者和相关专业人士都无法获得这些证据。使用 EGM 展示证据为自闭症患者和支持他们的人提供了一种便捷的方式,使他们能够迅速确定可能的支持途径,并使慈善家能够将研究资金用于优先领域。
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Commentary on “Wales and Autism: The Impact of Philanthropy Matched with Ambition”

Purpose

This paper is a commentary that aims to address themes arising from the article by Morgan titled “Wales and Autism: The Impact of Philanthropy Matched with Ambition”.

Design/methodology/approach

This opinion piece considers the broader impact of stakeholder engagement in the field of autism, including how the dissemination of evidence-based support could be made more accessible for autistic people, their families and carers and philanthropists.

Findings

This paper highlights the link between stakeholder engagement and meaningful change in policy and practice in the field of autism. It highlights the need for philanthropists to invest in evidence-based support but highlights the difficulty in identifying and accessing such support. This piece supports the use of evidence and gap maps (EGMs) to increase the accessibility of autism research and evidence.

Originality/value

While stakeholder engagement is encouragingly rising in this field, most of the evidence is held in academic journals, which are behind paywalls and, therefore, inaccessible to many autistic people, their families, carers and associated professionals. Displaying evidence using EGMs provides an accessible way for autistic people and those who support them to identify possible avenues of support quickly and allows philanthropists to direct research funding to areas of high priority.

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来源期刊
Tizard Learning Disability Review
Tizard Learning Disability Review EDUCATION, SPECIAL-
CiteScore
1.50
自引率
16.70%
发文量
20
期刊最新文献
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