癌症幸存者--优质癌症护理框架

Bradley Zebrack
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引用次数: 0

摘要

当被诊断出患有癌症或任何其他危及生命的疾病时,人们必须与两个曾经分离但现在又融合在一起的领域进行谈判--一个是医疗保健工业综合体,另一个是现在有意识地意识到死亡的日常生活--一种受制于死亡的状态。生活变得充满挑战,人际关系、身体形象和完整性、自主性和独立性、生活目标、希望和对未来的梦想都受到破坏。一个人是在身体上、情感上还是精神上存活下来、茁壮成长,抑或因癌症而屈服,都取决于治疗计划,而治疗计划要考虑到人们在健康和患病领域中体验双重公民身份的多种不同方式。癌症幸存者理论将医学和病人的观点整合到一个有说服力和连贯的框架中,有可能提高癌症护理的质量和病人的体验。
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Cancer Survivorship—A Framework for Quality Cancer Care
When diagnosed with cancer or any other life-threatening condition, people must negotiate two once-separate but now integrated realms—a medical care industrial complex and an everyday life now lived in conscious awareness of mortality—a state of being subject to death. Life becomes a series of challenges and disruptions to relationships, body image and integrity, autonomy and independence, life goals, hopes, and dreams for the future. Whether one physically, emotionally, or spiritually survives, thrives, or succumbs to cancer is dependent upon a treatment plan that accounts for the multiple and varied ways in which people experience dual citizenship in the realms of the well and the sick. A theory of cancer survivorship that integrates both medical and patient perspectives into a cogent and coherent framework has the potential to enhance the quality of cancer care and the patient experience.
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