{"title":"\"我别无选择,只能继续站起来做保护她的事情\":非正式照顾者对癌症诊断的适应。","authors":"Marcia A Winter, Rebecca Hoppe, Tara A Albrecht","doi":"10.1080/07347332.2024.2310813","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.</p><p><strong>Approach: </strong>Qualitative, constructivist approach.</p><p><strong>Participants: </strong>Caregivers (<i>N</i> = 28) of patients with HM within three months of diagnosis.</p><p><strong>Methods: </strong>A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.</p><p><strong>Findings: </strong>Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.</p><p><strong>Conclusions: </strong>Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.</p><p><strong>Implications for psychosocial providers: </strong>Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"622-635"},"PeriodicalIF":1.5000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"I don't have a choice but to keep getting up and doing the things that protect her\\\": The informal caregiver's adaptation to the cancer diagnosis.\",\"authors\":\"Marcia A Winter, Rebecca Hoppe, Tara A Albrecht\",\"doi\":\"10.1080/07347332.2024.2310813\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.</p><p><strong>Approach: </strong>Qualitative, constructivist approach.</p><p><strong>Participants: </strong>Caregivers (<i>N</i> = 28) of patients with HM within three months of diagnosis.</p><p><strong>Methods: </strong>A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.</p><p><strong>Findings: </strong>Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.</p><p><strong>Conclusions: </strong>Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.</p><p><strong>Implications for psychosocial providers: </strong>Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.</p>\",\"PeriodicalId\":47451,\"journal\":{\"name\":\"Journal of Psychosocial Oncology\",\"volume\":\" \",\"pages\":\"622-635\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Psychosocial Oncology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/07347332.2024.2310813\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/2/11 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"PSYCHOLOGY, SOCIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Psychosocial Oncology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/07347332.2024.2310813","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/2/11 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PSYCHOLOGY, SOCIAL","Score":null,"Total":0}
"I don't have a choice but to keep getting up and doing the things that protect her": The informal caregiver's adaptation to the cancer diagnosis.
Purpose: Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.
Approach: Qualitative, constructivist approach.
Participants: Caregivers (N = 28) of patients with HM within three months of diagnosis.
Methods: A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.
Findings: Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.
Conclusions: Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.
Implications for psychosocial providers: Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.
期刊介绍:
Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.