法国 11-15 岁青少年照顾者的普遍性和生活质量:一项以学校为基础的研究。

IF 6 2区 医学 Q1 PEDIATRICS European Child & Adolescent Psychiatry Pub Date : 2024-09-01 Epub Date: 2024-02-14 DOI:10.1007/s00787-024-02383-0
Jade Pilato, Géraldine Dorard, Aurélie Untas
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引用次数: 0

摘要

我们的研究旨在确定 11-15 岁法国青少年中青少年照护者(AYCs)的普遍程度,并通过对这些青少年生活质量的综合评估,探讨照护对他们的影响。共有 1983 名中学生(平均年龄 = 12.89 岁;56.23% 为女性)填写了自我报告问卷,评估了他们的社会人口特征、家庭中的疾病/残疾情况、照顾活动(MACA-YC18)、生活质量(KIDSCREEN-52)、健康感知和学习成绩。研究进行了描述性分析、独立性卡方检验、学生 t 检验、方差分析和协方差分析。结果表明,12.25% 的初中生是青少年学生。他们大多为女性,来自弱势经济背景。患病/残疾的亲属通常是父母,23.87%的受访者表示有一个以上患病/残疾的亲属。与同龄人相比,亚青会成员更常宣称自己患病或残疾,并在多个方面的生活质量得分较低:身体健康、心理健康、情绪和情感、自我认知、自主性、与父母的关系和家庭生活、经济资源、学校环境、社会接纳度。在社会支持和同伴维度上没有发现差异。鉴于青少年自闭症儿童在中学中的高发率以及这种情况对他们生活的影响,应为青少年自闭症儿童提供特别支持,并培训学校专业人员更好地识别和帮助青少年自闭症儿童。
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Prevalence and quality of life of 11-15-year-old adolescent young carers in France: a school-based study.

Our study aimed to establish the prevalence of adolescent young carers (AYCs) among 11-15-year-old French adolescents and explore the impacts of caring on these youths through a comprehensive evaluation of their quality of life. A total of 1983 middle school pupils (mean age = 12.89; 56.23% females) completed self-reported questionnaires evaluating their sociodemographic characteristics, illness/disability in their family, caring activities (MACA-YC18), quality of life (KIDSCREEN-52), perceived health, and academic performance. Descriptive analyses, Chi-square tests of independence, Student's t-tests, and analysis of variance and of covariance were conducted. The results showed that 12.25% of middle school pupils were AYCs. They were mostly females, coming from disadvantaged economic backgrounds. The ill/disabled relative was typically a parent, and 23.87% of respondents reported having more than one ill/disabled relative. The AYCs more often declared an illness or a disability and reported lower quality of life scores than their peers in several dimensions: Physical Well-Being, Psychological Well-Being, Moods and Emotions, Self-Perception, Autonomy, Relations with Parents and Home Life, Financial Resources, School Environment, Social Acceptance. No differences were identified in the Social Support and Peers dimension. Given the high prevalence of AYCs in middle schools and the impact of the situation on their lives, special support should be provided for AYCs, and professionals at school should be trained to better identify and assist AYCs.

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来源期刊
CiteScore
12.80
自引率
4.70%
发文量
186
审稿时长
6-12 weeks
期刊介绍: European Child and Adolescent Psychiatry is Europe''s only peer-reviewed journal entirely devoted to child and adolescent psychiatry. It aims to further a broad understanding of psychopathology in children and adolescents. Empirical research is its foundation, and clinical relevance is its hallmark. European Child and Adolescent Psychiatry welcomes in particular papers covering neuropsychiatry, cognitive neuroscience, genetics, neuroimaging, pharmacology, and related fields of interest. Contributions are encouraged from all around the world.
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