IF 0.3 4区 医学Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTHSante PubliquePub Date : 2024-01-01
Nicolas Lorente, Marion Di Ciaccio, Lucas Riegel, Lisa Kretzer, Annabelle Niyongabo, B Diane G Dondbzanga, Othmane Bourhaba, Océane Appfel Font, Cristina Iova, Bruno Spire, Jordi Casabona, Rosemary M Delabre, Daniela Rojas Castro
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引用次数: 0
摘要
以社区为基础的研究,即让受影响人群切实参与到与他们相关的科学知识的生产中来,是一种政治斗争,也是一种伦理需要。PLUS 联盟是一个防治艾滋病毒和肝炎的国际组织网络(其中大多数是非政府组织),它创建了一个社区研究实验室(CBRL),由来自 16 个以上国家和不同学科领域的人员组成。社区研究实验室的目标是提高研究能力,确保与当地和国际学术研究中心的合作,并开发国际研究项目。CBRL 在不同的合作伙伴之间发挥着桥梁作用,调和有时存在的利益分歧,并必须提供调解和支持,以促进社区与学术研究人员之间的对话、透明度和信任关系。然而,对科学合法性的需求迫使我们不断寻求平衡,既要满足实地需求,又要采用严谨的科学方法,同时还要优化现有资源并确定其优先次序。对这一平衡的不懈追求促使社区研究实验室重组其运作模式,优化与学术研究实验室的现有协同作用,以维护其科学合法性,并继续通过基于社区的创新和高质量研究为社会变革做出贡献。本文对 PLUS 联盟网络内社区研究的问题、挑战、实践和解决方案进行了批判性思考。
Entre science et engagement : les défis de la recherche communautaire au sein du réseau Coalition PLUS.
Community-based research, that is, the meaningful involvement of affected populations in the production of scientific knowledge that concerns them, is a political struggle and an ethical necessity. Coalition PLUS, an international network of organizations (most of them NGOs) fighting against HIV and hepatitis, created a community-based research laboratory (CBRL) composed of people from more than sixteen countries and various disciplinary fields. The objectives of the CBLR are to build research capacity, ensure collaboration with local and international academic research centers, and develop international research projects. The CBRL acts as a bridge between different partners, reconciling sometimes divergent interests, and must provide mediation and support to promote dialogue, transparency, and a relationship of trust between the communities and academic researchers. However, the need for scientific legitimacy obliges us to continuously seek a balance between responding to the needs of the field and using rigorous scientific methods, while optimizing and prioritizing existing resources. The permanent quest for this balance has led the CBRL to reorganize its mode of operation to optimize existing synergies with academic research laboratories, with a view to asserting its scientific legitimacy and continuing to contribute to social transformation through community-based research that is both innovative and of high quality. This paper provides a critical reflection on the issues, challenges, practices, and solutions of community-based research within the Coalition PLUS network.
期刊介绍:
La revue Santé Publique s’adresse à l’ensemble des acteurs de santé publique qu’ils soient décideurs,
professionnels de santé, acteurs de terrain, chercheurs, enseignants ou formateurs, etc. Elle publie
des travaux de recherche, des évaluations, des analyses d’action, des réflexions sur des interventions
de santé, des opinions, relevant des champs de la santé publique et de l’analyse des services de
soins, des sciences sociales et de l’action sociale.
Santé publique est une revue à comité de lecture, multidisciplinaire et généraliste, qui publie sur
l’ensemble des thèmes de la santé publique parmi lesquels : accès et recours aux soins, déterminants
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et santé perçue, santé scolaire, santé et travail, systèmes de santé, systèmes d’information, veille
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