{"title":"在罕见病诊断奥德赛中迷失方向","authors":"Kara A Ayik","doi":"10.1377/hlthaff.2023.01001","DOIUrl":null,"url":null,"abstract":"<p><p>A mother shares the story of her son's rare disease diagnostic journey and how providers failed them both along the way.</p>","PeriodicalId":50411,"journal":{"name":"Health Affairs","volume":"43 3","pages":"452-455"},"PeriodicalIF":8.6000,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Losing Our Way In A Rare Disease Diagnostic Odyssey.\",\"authors\":\"Kara A Ayik\",\"doi\":\"10.1377/hlthaff.2023.01001\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>A mother shares the story of her son's rare disease diagnostic journey and how providers failed them both along the way.</p>\",\"PeriodicalId\":50411,\"journal\":{\"name\":\"Health Affairs\",\"volume\":\"43 3\",\"pages\":\"452-455\"},\"PeriodicalIF\":8.6000,\"publicationDate\":\"2024-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Affairs\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1377/hlthaff.2023.01001\",\"RegionNum\":1,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Affairs","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1377/hlthaff.2023.01001","RegionNum":1,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
期刊介绍：
Health Affairs is a prestigious journal that aims to thoroughly examine significant health policy matters both domestically and globally. Our publication is committed to addressing issues that are relevant to both the private and public sectors. We are enthusiastic about inviting private and public decision-makers to contribute their innovative ideas in a publishable format. Health Affairs seeks to incorporate various perspectives from industry, labor, government, and academia, ensuring that our readers benefit from the diverse viewpoints within the healthcare field.
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