麻风病人的疾病叙述:紧急疫情爆发期间和之后的护理和康复污名化。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Qualitative Health Research Pub Date : 2024-10-01 Epub Date: 2024-03-10 DOI:10.1177/10497323241234482
Anthony K J Smith, Daniel Storer, Kari Lancaster, Bridget Haire, Christy E Newman, Sara Paparini, James MacGibbon, Vincent J Cornelisse, Timothy R Broady, Timmy Lockwood, Anna McNulty, Valerie Delpech, Martin Holt
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引用次数: 0

摘要

2022 年 5 月,全球爆发了一场痘疹(原猴痘病毒)疫情,数千名主要是男同性恋者和双性恋者受到影响。水痘通常是一种有时间限制的疾病,可伴有发热、疼痛和皮损,但可能需要住院治疗。有关水痘患者的亲身经历,包括症状、医疗保健和康复经历的研究很少。本研究探讨了 2022 年澳大利亚天花患者的不同疾病叙述。研究人员对16人进行了深度访谈和6个月的后续访谈,其中包括13名被诊断患有水痘的患者和3名密切接触者。所有参与者均为居住在澳大利亚的男性同性恋者或双性恋者。参与者描述了轻微至严重的患病期、与医疗机构接触的负面和污名化经历,一些参与者经历了水痘对其性健康和并发症的长期影响。疫情的紧急爆发意味着水痘给人们带来了极大的痛苦,使其难以控制,并对日常生活造成了不同形式的干扰。人们以不同的方式将水痘描述为一种干扰:对假期计划的轻微干扰、长时间的健康不佳,或促使人们重新评估性价值观和性健康的生物干扰事件。这项分析表明,与性行为和社会性相关的陌生突发疾病的爆发可能会重构个人生活和性健康,这表明在水痘和其他传染病爆发时,需要重点关注为患者提供优质护理。
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Mpox Illness Narratives: Stigmatising Care and Recovery During and After an Emergency Outbreak.

In May 2022, a global outbreak of mpox (formerly monkeypox virus) affected thousands of mainly gay and bisexual men. Mpox is usually a time-limited illness that can involve fever, pain, and skin lesions, but may require hospitalisation. There is scant research into the firsthand experiences of people affected by mpox, including experiences of symptoms, healthcare, and recovery. This study considers the different illness narratives of people who experienced mpox in Australia in 2022. In-depth interviews and 6-month follow-up interviews were conducted with 16 people, including 13 people diagnosed with mpox and three close contacts. All participants were cisgender gay or bisexual men living in Australia. Participants' accounts described minor to severe periods of sickness, negative and stigmatising experiences engaging with healthcare, and some participants experienced long-term effects on their sexual well-being and complications from mpox. The emergency outbreak context meant that mpox was highly distressing, making it difficult to manage and producing varying forms of disruption to everyday life. Mpox was narrated as disruptive in different ways: as a minor interruption to holiday plans, a prolonged period of poor health, or a biographically disruptive event prompting a re-evaluation of sexual values and health. This analysis demonstrates that an unfamiliar emergent disease outbreak related to sexual practices and sociality can reconfigure personal life and sexual well-being, suggesting a need to focus on providing quality patient care in outbreaks of mpox and other infectious diseases.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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