癌症之旅:突尼斯年轻成人患者的经历和观点。

IF 16.4 1区 化学 Q1 CHEMISTRY, MULTIDISCIPLINARY Accounts of Chemical Research Pub Date : 2024-04-05 DOI:10.1089/jayao.2023.0106
Y. Berrazaga, H. Rachdi, Myriam Saadi, A. A. Haouari, S. Fendri, N. Daoud, N. Mejri, H. Boussen
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引用次数: 0

摘要

目的:本研究旨在探讨突尼斯年轻成人癌症患者的经历。研究方法共有 104 名年龄在 20 岁至 40 岁之间、正在接受不同类型和不同阶段癌症治疗的患者参加了问卷调查。调查内容包括癌症的社会经济和心理影响、应对机制、人际关系、性生活和未来愿望。调查结果显示参与者中有 78 名女性(占 75%)和 26 名男性(占 25%),平均年龄为 33 岁。有 60 名患者(57.7%)表示有经济困难。对诊断结果最常见的情绪反应是悲伤(54.8%),其次是否认(18.3%)和愤怒(5.8%)。13名患者(12.5%)选择不接受有关其疾病阶段的信息。此外,42 名患者(40.4%)认为自己的身体吸引力下降,44.2%的病例观察到对性生活的负面影响。患者报告的主要担忧是害怕复发或病情恶化(48%)和不孕(48%)。此外,43 名患者(41.3%)表示自信心下降,主要受到经济困难(OR:2.77 [95% CI:1.12-6.87])、身体改变(OR:0.18 [95% CI:0.07-0.45])和性问题(OR:0.17 [95% CI:0.06-0.48])的影响。值得注意的是,78 名患者(75%)继续制定未来计划,尤其是 30 岁以下的患者(OR:0.2 [95% CI:0.04-0.96])。此外,47.1% 的患者表示倾向于移民到发达国家,这主要是由于他们认为发达国家的医疗保健系统优越(61.5%)。结论年轻癌症患者面临着一系列社会和心理挑战,这表明有必要采取专门的护理方法。
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Navigating the Cancer Journey: Experiences and Perspectives of Young Adult Patients in Tunisia.
Purpose: This study aimed to explore the experiences of young adult cancer patients within the Tunisian context. Methods: A total of 104 patients between the ages of 20 and 40, undergoing treatment for various types and stages of cancer, participated in a questionnaire-based survey. The survey encompassed topics related to the socioeconomic and psychological impacts of cancer, coping mechanisms, relationships, sexuality, and future aspirations. Results: Of the participants, 78 were women (75%) and 26 were men (25%), with an average age of 33 years. Financial difficulties were reported by 60 patients (57.7%). The most common emotional responses to the diagnosis were sadness (54.8%), followed by denial (18.3%) and anger (5.8%). Thirteen patients (12.5%) choose not to receive information about the stage of their disease. In addition, 42 patients (40.4%) experienced a decrease in perceived physical attractiveness, while negative effects on sexuality were observed in 44.2% of cases. The primary concerns reported by patients were the fear of recurrence or progression (48%) and infertility (48%). Furthermore, 43 patients (41.3%) expressed a decrease in self-confidence, notably influenced by financial difficulties (OR: 2.77 [95% CI: 1.12-6.87]), physical alterations (OR: 0.18 [95% CI: 0.07-0.45]), and sexual issues (OR: 0.17 [95% CI: 0.06-0.48]). Notably, 78 patients (75%) continued to make future plans, particularly those under 30 years of age (OR: 0.2 [95% CI: 0.04-0.96]). Moreover, 47.1% of patients expressed an inclination toward immigration to developed countries, primarily due to perceived superior health care systems (61.5%). Conclusions: Young cancer patients face a range of social and psychological challenges, suggesting the necessity for a specialized care approach.
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来源期刊
Accounts of Chemical Research
Accounts of Chemical Research 化学-化学综合
CiteScore
31.40
自引率
1.10%
发文量
312
审稿时长
2 months
期刊介绍: Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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