[哥伦比亚医疗机构为遗传性血管性水肿患者设计和实施跨学科护理模式]。

Revista alergia Mexico (Tecamachalco, Puebla, Mexico : 1993) Pub Date : 2024-02-01 DOI:10.29262/ram.v71i1.1378

Valentina Prada-Moreno, Juan David Wilches-Gutiérrez, Diana Roció Arias-Osorio

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引用次数: 0

摘要

目的：描述哥伦比亚为遗传性血管性水肿患者设计和实施的跨学科护理模式：描述哥伦比亚为遗传性血管性水肿患者设计和实施的跨学科护理模式：描述性纵向观察研究。140 名遗传性血管性水肿患者被纳入跨学科护理模式，为期一年。对发作率、住院率、急诊就诊率、生活质量和药物依从性进行了测量：结果：采用该模式后，癫痫发作率降低了 76%，住院率降低了 66%，急诊就诊率降低了 87%。服药依从性提高了 19%，并在四个月后达到完全依从。生活质量明显提高：遗传性血管性水肿是一种孤儿病，需要采用综合方法进行有效治疗。

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[Design and implementation of a transdisciplinary care model for patients with hereditary angioedema, in a Colombian health institution].

Objective: Describe the design and implementation of a transdisciplinary care model for patients with hereditary angioedema in Colombia.

Methods: Descriptive longitudinal observational study. 140 patients with hereditary angioedema were included in a transdisciplinary care model for one year. Seizure rates, hospitalizations, emergency room visits, quality of life, and pharmacological adherence were measured.

Results: The model was associated with reductions of 76% in seizures, 66% in hospitalizations, and 87% in emergency room visits. Pharmacological adherence increased 19% and was complete after four months. The quality of life increased significantly.

Conclusions: Hereditary angioedema is an orphan disease that requires a comprehensive approach for effective care.

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Revista alergia Mexico (Tecamachalco, Puebla, Mexico : 1993)

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