癌症相关血栓研究中的患者和公众参与:必要还是美化?

Simon Noble
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引用次数: 0

摘要

患者和公众参与(PPI)在研究中的优势正被越来越多的人所认识,但不同的研究机构采用的比例却不尽相同。同样,有些团体只是象征性地参与研究过程,这与患者和公众参与伙伴真正参与的程度不符。癌症相关血栓形成 (CAT) 研究领域的最新进展表明,从提出研究问题到传播研究结果,PPI 对整个研究过程的基础至关重要。本手稿旨在介绍在 CAT 研究框架内的 PPI 概述,并说明如果使用得当,PPI 如何能够提高项目的整体成功率、严谨性和相关性。
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Patient and public involvement in cancer-associated thrombosis research: necessary or glorified tokenism?
The advantages of patient and public involvement (PPI) in research are becoming more widely known, however different research organizations have different rates of adoption. Comparably, some groups provide tokenistic participation in the research process, which is inconsistent with the extent to which PPI partners are truly involved. Recent developments in the field of cancer-associated thrombosis (CAT) research have shown how crucial PPI is to the foundation of the entire research process, from formulating the research question to disseminating the findings. This manuscript aims to present an overview of PPI within the framework of CAT research and demonstrate how, when used appropriately, PPI can improve a project’s overall success, rigor, and relevance.
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