承认痴呆症是关系中的参与者:促进痴呆症家庭照顾者复原力的有利机制

R. A. Cooper, Chris Segrin
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摘要

尽管照顾患有阿尔茨海默氏症或相关痴呆症的家庭成员面临着巨大的挑战,但许多痴呆症家庭照顾者仍表现出了坚韧不拔的精神。本研究以抗逆力沟通理论为框架,探讨了抗逆力过程如何在痴呆症照护者与其家庭成员的关系中展开,以及痴呆症照护者的抗逆力体验。通过分析对成年子女和配偶照护者进行的 27 次访谈发现,承认痴呆症是关系中的一个角色是一个核心的促进机制,它使照护者能够在他们的关系中实施其他的沟通抗逆过程。抗逆过程是通过将责任转嫁给痴呆症、包容痴呆症和依靠记忆来实现的。照护者通过个人成长、增强关系亲密性和矛盾复原力来体验复原力。我们讨论了对痴呆症照护者复原力的影响,并提出了作为沟通复原力理论延伸的促进机制。
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Acknowledging dementia as an actor in the relationship: A facilitating mechanism promoting dementia family caregiver resilience
Despite the incredible challenges of caring for a family member with Alzheimer’s disease or a related dementia, many dementia family caregivers exhibit resilience. Framed by the communication theory of resilience, this study examines how resilience processes unfold within dementia caregivers’ relationships with their family member, and dementia caregivers’ experiences of resilience. Analysis of 27 interviews with adult children and spousal caregivers revealed acknowledging dementia as an actor in the relationship as a central facilitating mechanism that enabled caregivers to enact other communicative resilience processes within their relationship. Resilience processes were enacted through shifting blame to dementia, accommodating dementia, and relying on memories. Caregivers experienced resilience through personal growth, enhanced relational closeness, and ambivalent resilience. We discuss implications for dementia caregiver resilience and forward facilitating mechanisms as an extension of communication resilience theorizing.
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