ALS 研究与护理国际网络 (INARC)。

Amyotrophic lateral sclerosis & frontotemporal degeneration Pub Date : 2024-06-03 DOI:10.1080/21678421.2024.2362850

Juliette Foucher, Tommy M Bunte, Vanessa Bertone, Romy L Verschoor, Mathias Couillard, Corey Straub, Angela Genge, Caroline Ingre, Leonard H van den Berg

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摘要

肌萎缩侧索硬化症（ALS）研究与护理国际网络（INARC）成立于 2022 年。INARC 的主要目标是为 ALS 诊所和研究团队的非医生工作人员提供一个专门的平台。通过培养经验和专业知识交流，提高解决问题的能力，最终目标是提高 ALS 护理和研究的标准。本简短报告旨在介绍INARC的成立、2023年INARC会议以及INARC成员讨论的主题、吸取的教训和提出的挑战。

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International network for ALS research and care (INARC).

The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC's main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.

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Amyotrophic lateral sclerosis & frontotemporal degeneration

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