我就是喜欢数据":"雌狮 "用户对数据共享和隐私的看法与实践。

IF 1.8 3区 医学 Q2 FAMILY STUDIES Culture, Health & Sexuality Pub Date : 2024-07-06 DOI:10.1080/13691058.2024.2369596
Belinda Middleweek, Liz Klinger
{"title":"我就是喜欢数据\":\"雌狮 \"用户对数据共享和隐私的看法与实践。","authors":"Belinda Middleweek, Liz Klinger","doi":"10.1080/13691058.2024.2369596","DOIUrl":null,"url":null,"abstract":"<p><p>High profile data breaches and the proliferation of self-tracking technologies generating bio-feedback data have raised concerns about data privacy and data sharing practices among users of these devices. However, our understanding of how self-trackers in sexual health populations, where the data may be sensitive, personal, and stigmatising, perceive data privacy and sharing is limited. This study combined industry consultation with a survey of users of the world's first biofeedback smart vibrator, the <i>Lioness</i>, that enables users to monitor and analyse their sexual response intensity and orgasm duration over time. We found users of the Lioness are motivated to self-track by both individual and altruistic goals: to learn more about their bodies, and to contribute to research that leads to better sexual health outcomes. Perceptions of data privacy and data sharing were shaped by an eagerness to collaborate with sexual health researchers to challenge traditional male-centric perspectives in biomedical research on women's sexual health, where gender plays a crucial role in defining healthcare systems and outcomes. This study extends our understanding of the non-digital aspects of self-tracking by emphasising the role of gender and inclusive healthcare advocacy in shaping perceptions of data privacy and sharing within sexual health populations.</p>","PeriodicalId":10799,"journal":{"name":"Culture, Health & Sexuality","volume":" ","pages":"1-19"},"PeriodicalIF":1.8000,"publicationDate":"2024-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"'I just LOVE data': perceptions and practices of data sharing and privacy among users of the <i>Lioness</i>.\",\"authors\":\"Belinda Middleweek, Liz Klinger\",\"doi\":\"10.1080/13691058.2024.2369596\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>High profile data breaches and the proliferation of self-tracking technologies generating bio-feedback data have raised concerns about data privacy and data sharing practices among users of these devices. However, our understanding of how self-trackers in sexual health populations, where the data may be sensitive, personal, and stigmatising, perceive data privacy and sharing is limited. This study combined industry consultation with a survey of users of the world's first biofeedback smart vibrator, the <i>Lioness</i>, that enables users to monitor and analyse their sexual response intensity and orgasm duration over time. We found users of the Lioness are motivated to self-track by both individual and altruistic goals: to learn more about their bodies, and to contribute to research that leads to better sexual health outcomes. Perceptions of data privacy and data sharing were shaped by an eagerness to collaborate with sexual health researchers to challenge traditional male-centric perspectives in biomedical research on women's sexual health, where gender plays a crucial role in defining healthcare systems and outcomes. This study extends our understanding of the non-digital aspects of self-tracking by emphasising the role of gender and inclusive healthcare advocacy in shaping perceptions of data privacy and sharing within sexual health populations.</p>\",\"PeriodicalId\":10799,\"journal\":{\"name\":\"Culture, Health & Sexuality\",\"volume\":\" \",\"pages\":\"1-19\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2024-07-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Culture, Health & Sexuality\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/13691058.2024.2369596\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"FAMILY STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Culture, Health & Sexuality","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/13691058.2024.2369596","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"FAMILY STUDIES","Score":null,"Total":0}
引用次数: 0

摘要

高调的数据泄露事件和产生生物反馈数据的自我追踪技术的普及,引起了这些设备用户对数据隐私和数据共享做法的担忧。然而,我们对性健康人群中的自我跟踪者如何看待数据隐私和数据共享的了解还很有限,因为在这些人群中,数据可能是敏感的、个人的和耻辱性的。这项研究结合了行业咨询和对全球首款生物反馈智能振动器 Lioness 用户的调查,Lioness 能让用户监测和分析其性反应强度和性高潮持续时间。我们发现,"雌狮 "用户进行自我跟踪的动机既有个人目标,也有利他主义目标:更多地了解自己的身体,为研究做出贡献,从而获得更好的性健康结果。她们渴望与性健康研究人员合作,挑战女性性健康生物医学研究中传统的以男性为中心的观点,而性别在定义医疗保健系统和结果方面起着至关重要的作用,这影响了她们对数据隐私和数据共享的看法。本研究通过强调性别和包容性医疗保健宣传在塑造性健康人群的数据隐私和共享观念中的作用,扩展了我们对自我跟踪的非数字方面的理解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
'I just LOVE data': perceptions and practices of data sharing and privacy among users of the Lioness.

High profile data breaches and the proliferation of self-tracking technologies generating bio-feedback data have raised concerns about data privacy and data sharing practices among users of these devices. However, our understanding of how self-trackers in sexual health populations, where the data may be sensitive, personal, and stigmatising, perceive data privacy and sharing is limited. This study combined industry consultation with a survey of users of the world's first biofeedback smart vibrator, the Lioness, that enables users to monitor and analyse their sexual response intensity and orgasm duration over time. We found users of the Lioness are motivated to self-track by both individual and altruistic goals: to learn more about their bodies, and to contribute to research that leads to better sexual health outcomes. Perceptions of data privacy and data sharing were shaped by an eagerness to collaborate with sexual health researchers to challenge traditional male-centric perspectives in biomedical research on women's sexual health, where gender plays a crucial role in defining healthcare systems and outcomes. This study extends our understanding of the non-digital aspects of self-tracking by emphasising the role of gender and inclusive healthcare advocacy in shaping perceptions of data privacy and sharing within sexual health populations.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
4.60
自引率
4.50%
发文量
80
期刊最新文献
Negotiating belonging, risk and agency: discourses of sexuality among young people with migration experience in Southern Sweden. '[E]ven in our fear […] we wanted to do this': feminist organising for abortion in Africa as palimpsestic. 'How do I really want to be as a man?' Masculinities, critical consciousness, and contraceptive decision-making - findings from an interview study in Germany. 'It takes a village to raise a child': loss of ubuntu led to an escalation of teenage pregnancy during the COVID-19 lockdown in Uganda. Informal digital peer support for mental health: understanding the digital support practices of LGBTQ+ young people in Australia.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1