社区与学术界合作开展健康研究:研究开始前患者参与的迭代和透明过程。

IF 3.4 3区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Ethnicity & Disease Pub Date : 2024-07-02 eCollection Date: 2024-02-01 DOI:10.18865/ed.34.2.53
T Joseph Mattingly, Claudia Rose Baquet, Franklin Lance, Michelle Medeiros, C Daniel Mullins
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引用次数: 0

摘要

背景:造成 2019 年冠状病毒疾病(COVID-19)差异的根本原因包括经济发展和医疗服务中长期存在的系统性种族偏见、歧视、缺乏机会以及健康的社会决定因素。为了解决这些问题,研究机构和医疗保健系统必须转变视角,从只关注改变服务不足和弱势群体的行为转变为面向内部:我们与一个社区咨询委员会和一个非裔美国人教会合作,该教会已在研究方面合作了十多年,旨在确定社区规范、需求以及为 COVID-19 检测建立社区-学术合作关系所需的关键资源。我们有目的地从以下 3 个群体中抽取了具有同等代表性的参与者:(1)教会成员和领导人;(2)具有社区参与研究经验的学术或组织研究人员;(3)具有参与社区参与研究经验的社区成员。作为市政厅式会议的一部分,与会者在教堂地下室进行了实践练习:通过积极讨论,我们确定了 COVID-19 在服务不足的巴尔的摩社区(主要由非洲裔美国人组成)进行测试所需的商业模式要素。我们在讨论中确定了关键合作伙伴、活动、资源、成本、价值主张、社区关系、社区团体、沟通渠道以及社区接受的产出:结论:开发相互信任的商业案例,为未来的流行病和公共卫生危机做好更充分的准备,可以促进社区与学术界建立更可持续的合作伙伴关系。我们使用 "商业模式画布"(Business Model Canvas)勾勒出实现真正的社区-学术合作以促进健康公平所需的主要组成部分、活动和价值主张。
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Community-Academic Partnerships for Health Research: An Iterative and Transparent Process of Patient Engagement Before the Research Begins.

Background: The root causes of coronavirus disease 2019 (COVID-19) disparities include longstanding systemic racial bias in economic advancement and care delivery, discrimination, lack of access, and social determinants of health. To address these causes, research institutions and health care systems must shift their lens from one that focuses solely on changing behaviors among underserved and vulnerable populations to one that is inward facing.

Methods: We worked with a community advisory board and an African American church that has partnered on research for more than a decade to identify community norms, needs, and key resources needed for establishing community-academic partnerships for COVID-19 testing. Participants were purposefully sampled with equal representation from 3 groups: (1) church members and leaders, (2) academic or organization researchers with experience in community-engaged research, and (3) community members with experience participating in community-engaged research. Participants engaged in a hands-on exercise in the church basement as part of a town hall-style meeting.

Results: Active discussion led to the identification of business model components salient to COVID-19 testing in an underserved Baltimore community, predominantly made up of African Americans. Our discussion identified key partners, activities, resources, costs, value propositions, community relationships, community groups, communication channels, and outputs for community buy-in.

Conclusion: Developing the business case for mutual trustworthiness to be better prepared for future pandemics and public health crises may foster more sustainable community-academic partnerships. Using a Business Model Canvas, we delineate the major components, activities, and value propositions that are needed to achieve authentic community-academic partnerships to advance health equity.

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来源期刊
Ethnicity & Disease
Ethnicity & Disease 医学-公共卫生、环境卫生与职业卫生
CiteScore
6.30
自引率
0.00%
发文量
43
审稿时长
6-12 weeks
期刊介绍: Ethnicity & Disease is an international journal that exclusively publishes information on the causal and associative relationships in the etiology of common illnesses through the study of ethnic patterns of disease. Topics focus on: ethnic differentials in disease rates;impact of migration on health status; social and ethnic factors related to health care access and health; and metabolic epidemiology. A major priority of the journal is to provide a forum for exchange between the United States and the developing countries of Europe, Africa, Asia, and Latin America.
期刊最新文献
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