评估在线乳腺癌信息的准确性、质量和可读性

Elsie A. Valencia, C. Cortina, Adrienne N. Cobb, L. Chaudhary, Tracy Kelly, Amanda L. Kong
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引用次数: 0

摘要

使用专家评估和有效工具评估以患者为中心的乳腺癌网站的准确性、质量和可读性。 确保获取准确、高质量、可读性强的在线健康信息有助于做出明智决策和实现健康公平,但最近尚未对这些信息进行评估。 我们对 50 个网站进行了定性分析,并纳入了符合以下搜索条件的前 10 个网站:"乳腺癌"、"乳房手术"、"乳房整形手术"、"乳房化疗 "和 "乳房放疗"。网站必须为英文网站,且不面向医疗保健专业人员。准确性由 5 位乳腺癌专家进行评估。质量通过 DISCERN 问卷进行评估。可读性通过 9 项标准化测试进行测量。将平均可读性与美国医学会和美国国立卫生研究院的六级建议进行比较。 非营利性医院网站的准确性最高(平均值 = 4.06,标准差 = 0.42);不过,不同网站的准确性没有统计学差异(P = 0.08)。总体平均质量得分为 50.8("一般"/"好 "质量),不同网站之间无明显差异(P = 0.10)。平均可读性为 10 年级阅读水平,商业网站最低,平均阅读水平为 9 年级(SD = 2.38)。所有网站都比美国医学会和美国国立卫生研究院推荐的阅读水平高出 4.4 级(P < 0.001)。准确度较高的网站往往可读性较低,而准确度较低的网站可读性较高。 随着乳腺癌治疗变得越来越复杂,在保持高准确性的同时提高在线质量和可读性对于促进健康公平和增强患者对其治疗做出明智决定的能力至关重要。
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Evaluating the Accuracy, Quality, and Readability of Online Breast Cancer Information
To assess the accuracy, quality, and readability of patient-focused breast cancer websites using expert evaluation and validated tools. Ensuring access to accurate, high-quality, and readable online health information supports informed decision-making and health equity but has not been recently evaluated. A qualitative analysis on 50 websites was conducted; the first 10 eligible websites for the following search terms were included: “breast cancer,” “breast surgery,” “breast reconstructive surgery,” “breast chemotherapy,” and “breast radiation therapy.” Websites were required to be in English and not intended for healthcare professionals. Accuracy was evaluated by 5 breast cancer specialists. Quality was evaluated through the DISCERN questionnaire. Readability was measured using 9 standardized tests. Mean readability was compared with the American Medical Association and National Institutes of Health 6th grade recommendation. Nonprofit hospital websites had the highest accuracy (mean = 4.06, SD = 0.42); however, no statistical differences were observed in accuracy by website affiliation (P = 0.08). The overall mean quality score was 50.8 (“fair”/“good” quality) with no significant differences among website affiliations (P = 0.10). Mean readability was at the 10th grade reading level, the lowest being for commercial websites with a mean 9th grade reading level (SD = 2.38). All websites exceeded the American Medical Association- and National Institutes of Health-recommended reading level by 4.4 levels (P < 0.001). Websites with higher accuracy tended to have lower readability levels, whereas those with lower accuracy had higher readability levels. As breast cancer treatment has become increasingly complex, improving online quality and readability while maintaining high accuracy is essential to promote health equity and empower patients to make informed decisions about their care.
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