"最奇妙的事情是以个人身份来到这里,然后以团体成员身份上床睡觉":癌症晚期患者住宿课程参与者的经历。

Omega Pub Date : 2024-07-24 DOI:10.1177/00302228241264876
Henriette Søby Gärtner, Bodil H Blix, Mette Raunkiær, Helle Timm
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引用次数: 0

摘要

晚期癌症患者可能会丧失参与日常生活和有意义活动的能力,这对他们的身份认同感和社会关系提出了挑战。在病人与病人之间的互动中获得社会支持,并与处境相似的人分享经验,可能有助于减轻痛苦。本文以一项人种学实地研究为基础,该研究涉及三个住宿叙事课程,其中包括 36 名晚期癌症患者。在这项研究中,我们旨在探讨参与者是否认为这些课程具有重要意义,如果是,又是以何种方式认为的。实地工作包括 185 小时的观察、6 次焦点小组访谈和 9 次个人访谈。我们采用归纳专题法对数据进行了分析。我们的研究结果表明,参加者普遍认为寄宿课程是有意义的,尤其是环境、社区和获得希望被认为是有意义的。
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"The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group": Participants' Experiences From a Residential Course, for People With Advanced Cancer.

People who suffer from advanced cancer may experience a loss of ability to participate in everyday life and meaningful activities, challenging their sense of identity and social relations. Social support in patient-to-patient interactions and the sharing of experiences with people in similar situations may help alleviate distress. This article is based on an ethnographic field study carried out in relation to three residential narrative courses, which included 36 persons with advanced cancer. In this study, we aimed to explore whether the courses were perceived as significant by the participants and, if so, in what ways. The field work included 185 hr of observations, six focus group interviews and nine individual interviews. The data were analyzed using an abductive thematic approach. Our findings indicate that the residential courses were generally experienced as meaningful and that in particular the setting, the community, and gaining hope were experienced as significant.

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