为转移性乳腺癌患者提供支持性护理的复杂性:一项定性研究。

IF 3.1 2区 医学 Q2 ONCOLOGY Journal of Cancer Survivorship Pub Date : 2024-08-17 DOI:10.1007/s11764-024-01646-8
Marika Franklin, Sophie Lewis, Andrea L Smith
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引用次数: 0

摘要

目的:转移性乳腺癌的复杂性、快速发展的治疗方法以及长期生存的变化轨迹为提供支持性护理带来了独特的挑战。医护人员在为长期生活在不治之症中的癌症患者提供支持性护理方面的经验得到的研究关注有限。这项定性研究旨在进一步了解医护人员在这种情况下的支持性护理经验:通过电话和网络对澳大利亚 25 名支持转移性乳腺癌患者的医疗和社区护理专业人员进行了半结构化访谈。采用了多种抽样策略。进行了主题分析。结果:确定了三个关键主题。首先,参与者体验到支持性护理具有高度的关系性。其次,他们在实施支持性护理时遇到了许多道德和伦理困境。最后,在支持性护理在不同专业和环境中的价值不同的系统中,支持性护理的零散提供使支持性护理的实施变得更加复杂:结论:研究结果使人们注意到在转移性乳腺癌患者中开展支持性护理的复杂性,并对患者和专业人员产生了影响。为了提高为患者提供的护理质量并最大限度地降低专业人员职业倦怠的风险,需要在支持性护理指南中更多地关注专业人员在这种情况下所经历的伦理、道德和情感方面的复杂性:转移性乳腺癌患者在癌症幸存者中所占比例越来越大。通过这项研究获得的知识可以帮助专业人员更好地满足转移性乳腺癌患者的支持性护理需求,这是一种可以治疗但无法治愈的疾病。
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Complexities in supportive care for people with metastatic breast cancer: a qualitative study.

Purpose: The complexity of metastatic breast cancer, its rapidly evolving treatment, and the changing trajectory toward long-term survivorship create unique challenges for the provision of supportive care. The experiences of health professionals enacting supportive care in contexts of those living long-term with incurable cancer have received limited research attention. This qualitative study aimed to gain further insight into health professionals' experiences of supportive care in this context.

Method: Semi-structured interviews were conducted via phone and online with 25 health and community-care professionals who support people living with metastatic breast cancer in Australia. A mix of sampling strategies was used. Thematic analysis was undertaken. Findings were interpreted through an ethics of care lens.

Results: Three key themes were identified. First, participants experienced supportive care as highly relational. Second, they encountered numerous moral and ethical dilemmas in enacting supportive care. Finally, enacting supportive care was complicated by fragmented and sporadic provision in a system in which supportive care is differentially valued across professions and settings.

Conclusion: Findings draw attention to complexities in enacting supportive care in the context of metastatic breast cancer, with implications to patients and professionals. To improve the quality of care provided to patients and minimise the risk of professional burnout, greater attention is needed in supportive care guidelines to the ethical, moral, and emotional complexities experienced by professionals in this context.

Implications for cancer survivors: People living with metastatic breast cancer are a growing proportion of cancer survivors. The knowledge gained through this study may help professionals to better meet the supportive care needs of people living with metastatic breast cancer, a treatable but not curable condition.

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来源期刊
CiteScore
7.00
自引率
10.80%
发文量
149
审稿时长
>12 weeks
期刊介绍: Cancer survivorship is a worldwide concern. The aim of this multidisciplinary journal is to provide a global forum for new knowledge related to cancer survivorship. The journal publishes peer-reviewed papers relevant to improving the understanding, prevention, and management of the multiple areas related to cancer survivorship that can affect quality of care, access to care, longevity, and quality of life. It is a forum for research on humans (both laboratory and clinical), clinical studies, systematic and meta-analytic literature reviews, policy studies, and in rare situations case studies as long as they provide a new observation that should be followed up on to improve outcomes related to cancer survivors. Published articles represent a broad range of fields including oncology, primary care, physical medicine and rehabilitation, many other medical and nursing specialties, nursing, health services research, physical and occupational therapy, public health, behavioral medicine, psychology, social work, evidence-based policy, health economics, biobehavioral mechanisms, and qualitative analyses. The journal focuses exclusively on adult cancer survivors, young adult cancer survivors, and childhood cancer survivors who are young adults. Submissions must target those diagnosed with and treated for cancer.
期刊最新文献
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