Joana Bovião Monteiro, Ana Sofia Figueiredo, Sara Geraldes Paulino, Ana Sofia Teixeira, Sara Ganhão, Mariana Rodrigues, Francisca Aguiar, Iva Brito
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Patients were presented with a questionnaire that contained demographic and clinical questions, TRACS (Questionário de Preparação da Transição para a Autonomia nos Cuidados de Saúde) questionnaire - a validated Portuguese version of the Transition Readiness Assessment Questionnaire (TRAQ), and Hospital Anxiety and Depression Scale (HADS) questionnaire. Data was analyzed to assess the significant associations between the different variables and transition readiness outcome measured by the TRACS. Descriptive statistics, statistical comparisons and logistic regression analysis were performed.</p><p><strong>Results: </strong>A total of 69 patients with a median age of 20 [17.5-22.5] were included in this study. The median TRACS score was 4.41 [4.09-4.74]. Significantly higher TRACS scores were observed in patients who were female, 18 years of age or older, had a higher level of education, were employed, had active disease or that belonged to middle-class (when compared to patients belonging to upper- middle class). The logistic regression analysis demonstrated that being a female or having an educational status equal to 12th grade or superior emerged as predictors of higher transition readiness levels.</p><p><strong>Conclusions: </strong>Our study identified female sex and higher level of education as predictors of increased transition readiness levels. Therefore, healthcare providers should consider these variables when assessing patients for transition readiness and focus on improving transition process, especially in male and less educated AYAs.</p>","PeriodicalId":29669,"journal":{"name":"ARP Rheumatology","volume":" ","pages":"196-205"},"PeriodicalIF":1.4000,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Transition readiness assessment in Portuguese adolescents and young adults with pediatric-onset rheumatic diseases: a single-center study.\",\"authors\":\"Joana Bovião Monteiro, Ana Sofia Figueiredo, Sara Geraldes Paulino, Ana Sofia Teixeira, Sara Ganhão, Mariana Rodrigues, Francisca Aguiar, Iva Brito\",\"doi\":\"10.63032/IYRF3521\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>In this study, we aimed to assess the transition readiness levels amongst patients with childhood-onset rheumatic diseases. 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引用次数: 0
摘要
研究目的本研究旨在评估儿童期风湿病患者的过渡准备水平。此外,我们还试图找出并分析与青少年和年轻成人(AYAs)患者更好的过渡准备技能相关的预测因素:这是一项单中心横断面研究,研究对象包括2023年10月至12月期间在儿科和年轻成人风湿病门诊就诊的14至26岁患者,他们在18岁之前被诊断患有免疫介导的风湿病,病程至少1年。患者接受了一份包含人口统计学和临床问题的调查问卷、TRACS(Questionário de Preparação da Transição para a Autonomia nos Cuidados de Saúde)调查问卷--经过验证的葡萄牙语版过渡准备评估调查问卷(TRAQ),以及医院焦虑抑郁量表(HADS)调查问卷。我们对数据进行了分析,以评估不同变量与 TRACS 所测量的过渡准备结果之间的重要关联。研究人员进行了描述性统计、统计比较和逻辑回归分析:本研究共纳入 69 名患者,中位年龄为 20 岁 [17.5-22.5]。TRACS 评分中位数为 4.41 [4.09-4.74]。女性、18 岁或以上、受教育程度较高、有工作、有活动性疾病或属于中产阶级的患者(与属于中上层阶级的患者相比)的 TRACS 分数明显更高。逻辑回归分析表明,女性或受教育程度相当于 12 年级或更高,是较高过渡准备水平的预测因素:我们的研究发现,女性和较高的教育水平是提高过渡准备水平的预测因素。因此,医疗服务提供者在评估患者的过渡准备情况时应考虑这些变量,并重点改善过渡过程,尤其是男性和受教育程度较低的亚裔患者。
Transition readiness assessment in Portuguese adolescents and young adults with pediatric-onset rheumatic diseases: a single-center study.
Objective: In this study, we aimed to assess the transition readiness levels amongst patients with childhood-onset rheumatic diseases. Additionally, we sought to identify and analyze predictive factors associated with better transition readiness skills in adolescent and young adult (AYAs) patients.
Methods: This is a monocentric cross-sectional study that includes patients between 14 and 26 years of age who attended outpatient pediatric and young adult rheumatology appointments between October and December of 2023 and that were diagnosed with an immune-mediated rheumatic disease before reaching 18 years of age, with at least 1 year of disease duration. Patients were presented with a questionnaire that contained demographic and clinical questions, TRACS (Questionário de Preparação da Transição para a Autonomia nos Cuidados de Saúde) questionnaire - a validated Portuguese version of the Transition Readiness Assessment Questionnaire (TRAQ), and Hospital Anxiety and Depression Scale (HADS) questionnaire. Data was analyzed to assess the significant associations between the different variables and transition readiness outcome measured by the TRACS. Descriptive statistics, statistical comparisons and logistic regression analysis were performed.
Results: A total of 69 patients with a median age of 20 [17.5-22.5] were included in this study. The median TRACS score was 4.41 [4.09-4.74]. Significantly higher TRACS scores were observed in patients who were female, 18 years of age or older, had a higher level of education, were employed, had active disease or that belonged to middle-class (when compared to patients belonging to upper- middle class). The logistic regression analysis demonstrated that being a female or having an educational status equal to 12th grade or superior emerged as predictors of higher transition readiness levels.
Conclusions: Our study identified female sex and higher level of education as predictors of increased transition readiness levels. Therefore, healthcare providers should consider these variables when assessing patients for transition readiness and focus on improving transition process, especially in male and less educated AYAs.