针对囊性纤维化患儿照顾者的家长赋权干预的有效性:随机对照试验

Hatice Donmez, Fatma Tas Arslan
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摘要

本文重点研究了基于护理教育的家长赋权干预(PEINE)的有效性。该研究探讨了该干预措施是否改善了囊性纤维化(CF)患儿的生活质量,是否提高了护理人员对疾病的认识,是否培养了解决问题和应对疾病的技能。这项随机对照试验采用了前测-后测平行组研究设计。样本由 48 名 CF 患儿的父母(照顾者)组成。参与者被随机分配到干预组(24 人)和对照组(24 人)。干预组接受为期十周的 PEINE 和标准护理与治疗。对照组接受标准护理和治疗。通过疾病信息调查(DIS)、应对方式量表(WCI)、问题解决量表(PSI)和囊性纤维化问卷(CFQ-R)收集数据。干预后,干预组的 DIS 分数(d:1,627[CI:0.934,2.305])的正确率高于对照组。护理干预是有效的(p < .001)。测试前和测试后的 PSI 平均得分无明显差异(d:干预组和对照组在测试前和测试后的 PSI 平均得分(d:0.378 [CI:-0.221-0.972],WCI 平均得分(d:0.239 [CI:-0.356-0.831])没有明显差异(p>.05)。干预组和对照组的 CFQ-R 测试后平均得分有明显差异(d:1.363 [CI:l.698,2.015]);(p < .001)。PEINE提高了干预组参与者的疾病管理技能。然而,他们的 PSI 和 WCI 分数的增加在统计学上并不显著。PEINE 还提高了 CF 儿童的生活质量。儿科肺病患儿的家长参与了这项研究。家长们在门诊就诊时被告知了相关信息。首次会面后,通过电话与自愿同意参与研究的儿童和家长取得联系。门诊护士协助与患儿和家长沟通。
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The Effectiveness of a Parent Empowerment Intervention for Caregivers of Children with Cystic Fibrosis: A Randomized Controlled Trial.

This paper focused on the effectiveness of a parent empowerment intervention based on nursing education (PEINE). This study examined whether the intervention improved the quality of life of children with cystic fibrosis (CF) and improved their caregivers learn about the disease and develop problem-solving and coping skills. This randomized-controlled trial used a pretest-posttest parallel-group research design. The sample consisted of 48 parents (caregivers) of children with CF. Participants were randomly assigned to an intervention (n = 24) and a control group (n = 24). The intervention group received PEINE and standard care and treatment for ten weeks. The control group received standard care and treatment. Data were collected using a Disease Information Survey (DIS), the Ways of Coping Inventory (WCI), the Problem-Solving Inventory (PSI), and the Cystic Fibrosis Questionnaire (CFQ-R). After the intervention, the intervention group DIS scores (d: 1,627 [CI: 0.934,2.305], had more correct answers than the control group. Nursing interventions were effective (p < .001). There was no significant difference in the mean pretest-posttest PSI scores (d: 0.378 [CI: -0.221-0.972], posttest WCI scores (d: 0.239 [CI:-0.356-0.831]) between the intervention and control groups (p>.05). There was a significant difference in the mean posttest CFQ-R scores between the intervention and control groups (d: 1.363 [CI: l.698, 2.015]);(p < .001). PEINE increased the intervention group participants develop disease-management skills. However, the increase in their PSI and WCI scores was statistically insignificant. PEINE also increased the quality of life of children with CF. Parents of children followed in pediatric pulmonary diseases participated in the study. Parents were informed during outpatient clinic visits. After the first meeting, the children and parents who voluntarily agreed to participate in the research were contacted by phone. The outpatient nurse assisted in communicating with children and parents.

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