Enriqueta Roman , Josefa Barrio , Maria Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espin , Eva Martinez-Ojinaga , David Perez Solís , Maria Antonia Moreno , Joaquín Reyes , Luis Fernandez Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , y Ester Donat , Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Sociedad Española de Enfermedad Celíaca (SEEC), Sociedades de Digestivo de Adultos (AEG y SEPD), Sociedades de Atención Primaria de adultos (SEMFYC, SEMG y SEMERGEN)
{"title":"合理应用 ESPGHAN 2022 年关于儿科乳糜泻患者随访的建议:科学协会(SEGHNP、AEPAP、SEPEAP、SEEC、AEG、SEPD、SEMFYC、SEMG 和 SEMERGEN)的共识文件。","authors":"Enriqueta Roman , Josefa Barrio , Maria Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espin , Eva Martinez-Ojinaga , David Perez Solís , Maria Antonia Moreno , Joaquín Reyes , Luis Fernandez Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , y Ester Donat , Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Sociedad Española de Enfermedad Celíaca (SEEC), Sociedades de Digestivo de Adultos (AEG y SEPD), Sociedades de Atención Primaria de adultos (SEMFYC, SEMG y SEMERGEN)","doi":"10.1016/j.anpede.2024.09.008","DOIUrl":null,"url":null,"abstract":"<div><div>Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (PGU) and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and follow-up of adolescents and the transition to adult care.</div></div>","PeriodicalId":93868,"journal":{"name":"Anales de pediatria","volume":"101 4","pages":"Pages 267-277"},"PeriodicalIF":0.0000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Rational application of the ESPGHAN 2022 recommendations for the follow-up of the paediatric coeliac patient: consensus document of scientific societies (SEGHNP, AEPAP, SEPEAP, SEEC, AEG, SEPD, SEMFYC, SEMG and SEMERGEN)\",\"authors\":\"Enriqueta Roman , Josefa Barrio , Maria Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espin , Eva Martinez-Ojinaga , David Perez Solís , Maria Antonia Moreno , Joaquín Reyes , Luis Fernandez Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , y Ester Donat , Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Sociedad Española de Enfermedad Celíaca (SEEC), Sociedades de Digestivo de Adultos (AEG y SEPD), Sociedades de Atención Primaria de adultos (SEMFYC, SEMG y SEMERGEN)\",\"doi\":\"10.1016/j.anpede.2024.09.008\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><div>Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (PGU) and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and follow-up of adolescents and the transition to adult care.</div></div>\",\"PeriodicalId\":93868,\"journal\":{\"name\":\"Anales de pediatria\",\"volume\":\"101 4\",\"pages\":\"Pages 267-277\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Anales de pediatria\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2341287924002333\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Anales de pediatria","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2341287924002333","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Rational application of the ESPGHAN 2022 recommendations for the follow-up of the paediatric coeliac patient: consensus document of scientific societies (SEGHNP, AEPAP, SEPEAP, SEEC, AEG, SEPD, SEMFYC, SEMG and SEMERGEN)
Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (PGU) and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and follow-up of adolescents and the transition to adult care.