了解行动不便的脑瘫幼儿母亲决策的复杂性：定性现象学研究。

IF 4.3 2区医学 Q1 CLINICAL NEUROLOGY Developmental Medicine and Child Neurology Pub Date : 2024-11-06 DOI:10.1111/dmcn.16173

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引用次数: 0

摘要

让父母参与决策是医学的一个重要目标。关于是什么影响了父母的决定，我们还有很多要学习。脑瘫（CP）是一种复杂的终身疾病。患有CP的孩子的父母会做出很多关于做什么或不做什么的决定，这与他们孩子的医疗保健有关。我们研究的目的是与父母交谈，了解影响他们决策的因素。一位作者采访了18位有20个孩子的母亲。孩子必须是4到8岁，有痉挛，有一定的行走能力。我们特别想和这群父母谈谈，因为不仅家庭有很多医疗决定要做，而且一些治疗方法没有很多研究来知道它们有多大的帮助。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Understanding the complexity of decision-making for mothers of young children with ambulatory cerebral palsy: A qualitative phenomenological study

Including parents in decision-making is an important goal in medicine. We still have a lot to learn about what influences the decisions that parents make. Cerebral palsy (CP) is a lifelong and complex condition. Parents of children with CP make a lot of decisions about what to do, or not, related to their child's medical care. The purpose of our study was to talk to parents to understand what things impact their decision-making.

One author talked to 18 mothers of 20 children. Children had to be 4 to 8 years old, have spasticity, and have some ability to walk. We wanted to talk to this group of parents specifically because, not only do families have a lot of medical decisions to make, but some of the treatments do not have a lot of research to know how helpful they are.

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来源期刊

Developmental Medicine and Child Neurology 医学-临床神经学

CiteScore

7.80

自引率

13.20%

发文量

338

审稿时长

3-6 weeks

期刊介绍： Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA). For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.