'I haven't discussed anything with anyone': lived experience of long-term users of benzodiazepine receptor agonists regarding their treatment for substance use disorder.

Introduction: Treatment for substance use disorder (SUD) to benzodiazepine receptor agonists (BZRA) can be challenging and lengthy. BZRA are prescribed for anxiety and insomnia, and though guidelines recommend an initial prescription duration of one to four weeks, this is frequently longer. Understanding the multiple challenges associated with withdrawing from BZRA and exploring the nuance and complexities from the patient's perspective is crucial.

Methods: In this study, we explore the experiences of SUD to BZRA with nineteen users, who have subsequently either stabilized, reduced, or discontinued their usage. The data were analysed using Interpretative Phenomenological Analysis.

Findings: Our study identified five key themes regarding the long-term use of BZRA which address inadequate patient information, strict adherence to prescribed medication, minimal involvement in cessation plans, respecting patient readiness for tapering and personalized tapering approaches.

Conclusion: These findings indicate that patients' blind trust in their providers can prevent them from voicing concerns, highlighting the importance of an authentic and collaborative relationship between the patient and healthcare provider, while respecting patient autonomy. The goal-oriented care approach could improve BZRA management by aligning treatment with individual goals, enhancing satisfaction, and addressing the complexities of long-term use and withdrawal.