{"title":"探索影响智障青少年口腔健康的障碍:从母亲的角度看问题--一项定性研究。","authors":"D Anusha, S Keingadarane, D J Caplan, S Sivasamy","doi":"10.1007/s40368-024-00975-7","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Oral health plays a critical role in overall well-being, particularly among adolescents, including those with intellectual disabilities. Caregivers, particularly mothers, play an essential role in guiding and supporting these adolescents in maintaining good oral health. This study examined the oral health problems and challenges faced by children with intellectual disabilities from the perspective of their mothers.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with 22 mothers of intellectually disabled adolescents aged 12-18 years in Pondicherry, India. A purposive sampling method was employed to gather information-rich insights from a diverse group of mothers. The interviews were guided by an interview protocol that included open-ended questions about the challenges in maintaining oral health, experiences with dental care providers, and perceived need for support. Thematic analysis was conducted to identify and interpret key themes.</p><p><strong>Results: </strong>The study identified six key themes affecting the oral health of adolescents with intellectual disabilities from maternal perspectives: physical and behavior challenges, limited access to specialized dental care, financial constraints, lack of professional support and education, emotional and psychological impact on mothers, and social stigma and isolation.</p><p><strong>Conclusion: </strong>The identified themes highlight the need for comprehensive and multifaceted interventions to address the physical, logistical, financial, educational, and emotional challenges. By understanding and addressing these barriers, healthcare providers, policymakers, and support organizations can improve oral health outcomes and the overall quality of life for adolescents with intellectual disabilities and their families.</p>","PeriodicalId":47603,"journal":{"name":"European Archives of Paediatric Dentistry","volume":" ","pages":""},"PeriodicalIF":2.3000,"publicationDate":"2024-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Exploring the obstacles affecting the oral health of adolescents with intellectual disabilities: insights from maternal perspectives-a qualitative study.\",\"authors\":\"D Anusha, S Keingadarane, D J Caplan, S Sivasamy\",\"doi\":\"10.1007/s40368-024-00975-7\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Oral health plays a critical role in overall well-being, particularly among adolescents, including those with intellectual disabilities. Caregivers, particularly mothers, play an essential role in guiding and supporting these adolescents in maintaining good oral health. This study examined the oral health problems and challenges faced by children with intellectual disabilities from the perspective of their mothers.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with 22 mothers of intellectually disabled adolescents aged 12-18 years in Pondicherry, India. A purposive sampling method was employed to gather information-rich insights from a diverse group of mothers. The interviews were guided by an interview protocol that included open-ended questions about the challenges in maintaining oral health, experiences with dental care providers, and perceived need for support. Thematic analysis was conducted to identify and interpret key themes.</p><p><strong>Results: </strong>The study identified six key themes affecting the oral health of adolescents with intellectual disabilities from maternal perspectives: physical and behavior challenges, limited access to specialized dental care, financial constraints, lack of professional support and education, emotional and psychological impact on mothers, and social stigma and isolation.</p><p><strong>Conclusion: </strong>The identified themes highlight the need for comprehensive and multifaceted interventions to address the physical, logistical, financial, educational, and emotional challenges. By understanding and addressing these barriers, healthcare providers, policymakers, and support organizations can improve oral health outcomes and the overall quality of life for adolescents with intellectual disabilities and their families.</p>\",\"PeriodicalId\":47603,\"journal\":{\"name\":\"European Archives of Paediatric Dentistry\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2024-11-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"European Archives of Paediatric Dentistry\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1007/s40368-024-00975-7\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"DENTISTRY, ORAL SURGERY & MEDICINE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"European Archives of Paediatric Dentistry","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1007/s40368-024-00975-7","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"DENTISTRY, ORAL SURGERY & MEDICINE","Score":null,"Total":0}
Exploring the obstacles affecting the oral health of adolescents with intellectual disabilities: insights from maternal perspectives-a qualitative study.
Background: Oral health plays a critical role in overall well-being, particularly among adolescents, including those with intellectual disabilities. Caregivers, particularly mothers, play an essential role in guiding and supporting these adolescents in maintaining good oral health. This study examined the oral health problems and challenges faced by children with intellectual disabilities from the perspective of their mothers.
Methods: Semi-structured interviews were conducted with 22 mothers of intellectually disabled adolescents aged 12-18 years in Pondicherry, India. A purposive sampling method was employed to gather information-rich insights from a diverse group of mothers. The interviews were guided by an interview protocol that included open-ended questions about the challenges in maintaining oral health, experiences with dental care providers, and perceived need for support. Thematic analysis was conducted to identify and interpret key themes.
Results: The study identified six key themes affecting the oral health of adolescents with intellectual disabilities from maternal perspectives: physical and behavior challenges, limited access to specialized dental care, financial constraints, lack of professional support and education, emotional and psychological impact on mothers, and social stigma and isolation.
Conclusion: The identified themes highlight the need for comprehensive and multifaceted interventions to address the physical, logistical, financial, educational, and emotional challenges. By understanding and addressing these barriers, healthcare providers, policymakers, and support organizations can improve oral health outcomes and the overall quality of life for adolescents with intellectual disabilities and their families.
期刊介绍:
The aim and scope of European Archives of Paediatric Dentistry (EAPD) is to promote research in all aspects of dentistry for children, including interceptive orthodontics and studies on children and young adults with special needs. The EAPD focuses on the publication and critical evaluation of clinical and basic science research related to children. The EAPD will consider clinical case series reports, followed by the relevant literature review, only where there are new and important findings of interest to Paediatric Dentistry and where details of techniques or treatment carried out and the success of such approaches are given.