探索影响智障青少年口腔健康的障碍:从母亲的角度看问题--一项定性研究。

IF 2.3 Q2 DENTISTRY, ORAL SURGERY & MEDICINE European Archives of Paediatric Dentistry Pub Date : 2024-11-25 DOI:10.1007/s40368-024-00975-7
D Anusha, S Keingadarane, D J Caplan, S Sivasamy
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引用次数: 0

摘要

背景:口腔健康对整体健康起着至关重要的作用,尤其是对青少年,包括智障青少年。照顾者,尤其是母亲,在指导和支持这些青少年保持良好的口腔健康方面发挥着至关重要的作用。本研究从智障儿童母亲的角度,探讨了智障儿童面临的口腔健康问题和挑战:对印度朋迪榭里(Pondicherry)22 名 12-18 岁智障青少年的母亲进行了半结构式访谈。访谈采用了有目的的抽样方法,以便从不同的母亲群体中收集丰富的信息。访谈以访谈协议为指导,其中包括有关保持口腔健康的挑战、与牙科保健提供者接触的经历以及对支持的感知需求等开放式问题。研究进行了主题分析,以确定和解释关键主题:研究从母亲的角度确定了影响智障青少年口腔健康的六个关键主题:身体和行为挑战、获得专业牙科护理的机会有限、经济限制、缺乏专业支持和教育、对母亲的情感和心理影响以及社会羞辱和隔离:所确定的主题突出表明,需要采取全面和多方面的干预措施,以应对身体、后勤、经济、教育和情感方面的挑战。通过了解和解决这些障碍,医疗服务提供者、政策制定者和支持机构可以改善口腔健康状况,提高智障青少年及其家庭的整体生活质量。
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Exploring the obstacles affecting the oral health of adolescents with intellectual disabilities: insights from maternal perspectives-a qualitative study.

Background: Oral health plays a critical role in overall well-being, particularly among adolescents, including those with intellectual disabilities. Caregivers, particularly mothers, play an essential role in guiding and supporting these adolescents in maintaining good oral health. This study examined the oral health problems and challenges faced by children with intellectual disabilities from the perspective of their mothers.

Methods: Semi-structured interviews were conducted with 22 mothers of intellectually disabled adolescents aged 12-18 years in Pondicherry, India. A purposive sampling method was employed to gather information-rich insights from a diverse group of mothers. The interviews were guided by an interview protocol that included open-ended questions about the challenges in maintaining oral health, experiences with dental care providers, and perceived need for support. Thematic analysis was conducted to identify and interpret key themes.

Results: The study identified six key themes affecting the oral health of adolescents with intellectual disabilities from maternal perspectives: physical and behavior challenges, limited access to specialized dental care, financial constraints, lack of professional support and education, emotional and psychological impact on mothers, and social stigma and isolation.

Conclusion: The identified themes highlight the need for comprehensive and multifaceted interventions to address the physical, logistical, financial, educational, and emotional challenges. By understanding and addressing these barriers, healthcare providers, policymakers, and support organizations can improve oral health outcomes and the overall quality of life for adolescents with intellectual disabilities and their families.

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来源期刊
European Archives of Paediatric Dentistry
European Archives of Paediatric Dentistry DENTISTRY, ORAL SURGERY & MEDICINE-
CiteScore
4.40
自引率
9.10%
发文量
81
期刊介绍: The aim and scope of European Archives of Paediatric Dentistry (EAPD) is to promote research in all aspects of dentistry for children, including interceptive orthodontics and studies on children and young adults with special needs. The EAPD focuses on the publication and critical evaluation of clinical and basic science research related to children. The EAPD will consider clinical case series reports, followed by the relevant literature review, only where there are new and important findings of interest to Paediatric Dentistry and where details of techniques or treatment carried out and the success of such approaches are given.
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